disastrousant
New member
- Joined
- Oct 4, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MA
Hi all, thank you for taking the time to read this in advance. I never thought I would get to the point of posting on here and looking for some answers, but here I am. the reality is that my neurologists have been very bad and with covid all the larger institutions are booked out months... making it very hard to get an appointment anywhere good.
my symptoms started this spring with a constant state of malaise or general fatigue. i had some abnormal bloodwork but that has been corrected since. i noticed i was twitching in late may or early june in my legs and i have widespread twitching ever since. it is constant and never really stops unless i move. during this time i have been so tired and fatigued that i havent worked out in months, i still have strength but the exhaustion i feel has been terrible. i used to work out five times a week very heavy. i havent been able to get motivation or honestly energy to work out in that time. i have since developed tremors in my hands, mostly my left pointer finger each time i raise it. i also have this weird rippling look in my thighs when i bend then down or load them. it looks like the individual muslces within them are waving and its every time i bend or flex my legs. i have some visual symptoms and other things as well but the bottom line is, something is wrong with me and my doctors agree.
i have been to probably 7 or 8 doctors with different specialties over the past 5 months. one neuro told me that i didnt have anything bad and i passed the clinical about 2.5 months ago. i set up an emg that was done about a month and a half ago and it came back mildly abnormal. my doctor never called me and wont give me a call back to discuss the results with me so i was hoping for some help by some knowledgable people on here. please let me know what you think about this report if you can. thank you in advance.
my symptoms started this spring with a constant state of malaise or general fatigue. i had some abnormal bloodwork but that has been corrected since. i noticed i was twitching in late may or early june in my legs and i have widespread twitching ever since. it is constant and never really stops unless i move. during this time i have been so tired and fatigued that i havent worked out in months, i still have strength but the exhaustion i feel has been terrible. i used to work out five times a week very heavy. i havent been able to get motivation or honestly energy to work out in that time. i have since developed tremors in my hands, mostly my left pointer finger each time i raise it. i also have this weird rippling look in my thighs when i bend then down or load them. it looks like the individual muslces within them are waving and its every time i bend or flex my legs. i have some visual symptoms and other things as well but the bottom line is, something is wrong with me and my doctors agree.
i have been to probably 7 or 8 doctors with different specialties over the past 5 months. one neuro told me that i didnt have anything bad and i passed the clinical about 2.5 months ago. i set up an emg that was done about a month and a half ago and it came back mildly abnormal. my doctor never called me and wont give me a call back to discuss the results with me so i was hoping for some help by some knowledgable people on here. please let me know what you think about this report if you can. thank you in advance.
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