ThisPresentMoment
Distinguished member
- Joined
- May 30, 2018
- Messages
- 124
- Reason
- Lost a loved one
- Diagnosis
- 12/2017
- Country
- US
- State
- MN
- City
- Minneapolis
I'm so sorry to welcome you smiles4Dakota, but you are very welcome indeed. My Dad was diagnosed at the end of 2017. He started with upper limb onset, so his hands / arms were first affected. We have completed the second opinions and the diagnosis is confirmed. He's lost approximately 20% of his upper body strength in the past six months.
We've now moved on to getting prepared. We've hired outside help part time. We're re-checking estate planning. We go for a wheelchair consultation tomorrow. We laugh. We cry. We try to count our blessings every day.
I'm sure that you're both still in shock. I furiously hope that his diagnosis is not confirmed by second opinion. In case it is, my advice is this:
If there is anything on his bucket list, do it now. Do not wait.
Do not invest your time, energy, and financial resources in non mainstream medical adventures.
Live in and treasure the present moment.
We've now moved on to getting prepared. We've hired outside help part time. We're re-checking estate planning. We go for a wheelchair consultation tomorrow. We laugh. We cry. We try to count our blessings every day.
I'm sure that you're both still in shock. I furiously hope that his diagnosis is not confirmed by second opinion. In case it is, my advice is this:
If there is anything on his bucket list, do it now. Do not wait.
Do not invest your time, energy, and financial resources in non mainstream medical adventures.
Live in and treasure the present moment.