Hi. I told my story breifly in the bottom intro part. Here's the short version. I go by Josi in real life. My mother died in 99, caused by liver failure from some form of sclerosis which she was diagnosed with days before her death. My father never remembered the name as he .. is just like that. He lost her urn as well.. long story.. but ..
Mum never told me as her liver failed first and instead of having five years.. she died within 6 months of becoming ill.. she never became paralyzed.. her liver went first.
Sooooooo... now I'm sick. I was recently diagnosed with Multiple Sclerosis. Got a big one on my head and a bunch on my spine..and I have been paralyzed.. and still am.... half. See, in februruary.. i felt funny. My limbs..both hands and legs began to feel like I was wearing silk over them. Lovely. Both legs, both hands. Over time..that feeling.. not the normal ms feeling.. has stayed. My hands have gotten progressively weaker ..from pinky to middle.. now a weak index.. and both legs. I have to look to see which way my toes are pointing. The ms flair cleared.. but the bilateral stuff is staying. My dr says.. well, you are progressive..... but.. with mum's history...
I have trouble.. my lungs get tingly and i have problems breathing.. my throat has problems, and I am just getting over another case of aspiration pneumonia... so whatever is happening to me, I can see and feel which way I am going. I've had problems getting to my computer chair, but am so lucky to be ab le to lean on things, and have trained my stiff and curled fingers to type relatively well. Either way.. I'd love to know some things. I just want to know from some experienced people... i was a fool for never knowing what my own mother had. I was young.
My main questions... this one is medical, and its ... with ALS, do lesions appear anywhere on mri images.
I also want to know if any of you guys have a tight band that goes all the way down your back from under yuur ribs that feels funny if you push on it... the ms people don't have that one.. i get that with a very sharp pain in my side, like a phantom stabber.
The third is.. what kinds of ALS are there, and is there a form that takes the organs before it takes the limbs?
Sorry to ask so bluntly.. but those are questions I haven't gotten a clear answer on the internet to.
As i said.. just here to learn. Glad to meet you all.
Mum never told me as her liver failed first and instead of having five years.. she died within 6 months of becoming ill.. she never became paralyzed.. her liver went first.
Sooooooo... now I'm sick. I was recently diagnosed with Multiple Sclerosis. Got a big one on my head and a bunch on my spine..and I have been paralyzed.. and still am.... half. See, in februruary.. i felt funny. My limbs..both hands and legs began to feel like I was wearing silk over them. Lovely. Both legs, both hands. Over time..that feeling.. not the normal ms feeling.. has stayed. My hands have gotten progressively weaker ..from pinky to middle.. now a weak index.. and both legs. I have to look to see which way my toes are pointing. The ms flair cleared.. but the bilateral stuff is staying. My dr says.. well, you are progressive..... but.. with mum's history...
I have trouble.. my lungs get tingly and i have problems breathing.. my throat has problems, and I am just getting over another case of aspiration pneumonia... so whatever is happening to me, I can see and feel which way I am going. I've had problems getting to my computer chair, but am so lucky to be ab le to lean on things, and have trained my stiff and curled fingers to type relatively well. Either way.. I'd love to know some things. I just want to know from some experienced people... i was a fool for never knowing what my own mother had. I was young.
My main questions... this one is medical, and its ... with ALS, do lesions appear anywhere on mri images.
I also want to know if any of you guys have a tight band that goes all the way down your back from under yuur ribs that feels funny if you push on it... the ms people don't have that one.. i get that with a very sharp pain in my side, like a phantom stabber.
The third is.. what kinds of ALS are there, and is there a form that takes the organs before it takes the limbs?
Sorry to ask so bluntly.. but those are questions I haven't gotten a clear answer on the internet to.
As i said.. just here to learn. Glad to meet you all.