Nonduality
New member
- Joined
- Mar 3, 2022
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hello everyone,
I am now almost 8 months into twitching and things seem to have gotten worse.
My girlfriend also started twitching maybe 3 months ago as well?
We both had omnicron in jan and are pfizer vax some time in spring of 2021 I believe.
The twitches have gotten a bit worse but more concerning is these other symptoms I'm having:
1. My left leg falls asleep quite alseep and goes very numb when sitting in certain positions. I have had my leg fall asleep many times before twitching but it falls asleep 10x faster and the numbness covers a greater area and gets much number than before.
2. My right pinky toe has recently started to seperate from the rest when flexing my toes - it also gets a weird sensation almost like a small part of it is numb? but not exactly.
3. The worst is my tongue - if I'm chewing for more than 10 seconds my tongue gets VERY tired. This started happening maybe 3 months ago. It depends what I'm eating but something like a sandwich is pretty difficult - I have to chew less than before.
4. My speech - I don't notice a slurr but I believe I have developed a lisp. My S pronounciation sounds different and stronger like a lisp.
5. Holding up my neck feels difficult now - like it gets tired very fast.
6. My joints crack and pop every morning when getting out of bed and I'm pulling muscles I never had previously - this was never a thing for me pre twitching
In full transparency I did have a clean EMG 3 months ago - but I just don't understand what else is causing this. Maybe this is early bulbar with unusual presentation? I also have had candida/thrush for awhile with yeast problems -i had seen some links to this and ALS But hoping it's not the cause as antibiotics really messed me up a few years ago.
I feel like 99.99% of the time the reply to these posts is usually that the person is fine unless they literally can't lift there foot off the ground - but my body just isn't functioning the same and it may be time for a second neuro visit and emg to get clarity.
As for my girlfriend twitching - I hope it's psychosomatic and not some form of ALS being triggered by covid/vaccine.
Thank you in advance to all the brave and supportive people here.
I am now almost 8 months into twitching and things seem to have gotten worse.
My girlfriend also started twitching maybe 3 months ago as well?
We both had omnicron in jan and are pfizer vax some time in spring of 2021 I believe.
The twitches have gotten a bit worse but more concerning is these other symptoms I'm having:
1. My left leg falls asleep quite alseep and goes very numb when sitting in certain positions. I have had my leg fall asleep many times before twitching but it falls asleep 10x faster and the numbness covers a greater area and gets much number than before.
2. My right pinky toe has recently started to seperate from the rest when flexing my toes - it also gets a weird sensation almost like a small part of it is numb? but not exactly.
3. The worst is my tongue - if I'm chewing for more than 10 seconds my tongue gets VERY tired. This started happening maybe 3 months ago. It depends what I'm eating but something like a sandwich is pretty difficult - I have to chew less than before.
4. My speech - I don't notice a slurr but I believe I have developed a lisp. My S pronounciation sounds different and stronger like a lisp.
5. Holding up my neck feels difficult now - like it gets tired very fast.
6. My joints crack and pop every morning when getting out of bed and I'm pulling muscles I never had previously - this was never a thing for me pre twitching
In full transparency I did have a clean EMG 3 months ago - but I just don't understand what else is causing this. Maybe this is early bulbar with unusual presentation? I also have had candida/thrush for awhile with yeast problems -i had seen some links to this and ALS But hoping it's not the cause as antibiotics really messed me up a few years ago.
I feel like 99.99% of the time the reply to these posts is usually that the person is fine unless they literally can't lift there foot off the ground - but my body just isn't functioning the same and it may be time for a second neuro visit and emg to get clarity.
As for my girlfriend twitching - I hope it's psychosomatic and not some form of ALS being triggered by covid/vaccine.
Thank you in advance to all the brave and supportive people here.