hi everyone.
i don't have much to say or ask. just having a spurt of bad feelings about my aunt. she's not doing so great. choking at night. can't swallow her food very well. i don't know how to approach the idea of a feeding tube with her. everyone is still trying to pretend she's fine i think. and is the bipap machine for sleeping? what does it help with? perhaps it's something that would prevent her from choking at night? i don't know.
i wish i could come up with a way to cure ALS. i hate hate hate knowing that my aunt or any of you are suffering. i want so badly to just take it all away and make it all better. sometimes i think about it too hard and i am just shocked that this is happening to my aunt. it's surreal.
sorry for the rambling. and i hate to be a downer. just one of those days, you know? and not many people really understand how you feel unless they're going through the same thing.
love to you all.
nicole
i don't have much to say or ask. just having a spurt of bad feelings about my aunt. she's not doing so great. choking at night. can't swallow her food very well. i don't know how to approach the idea of a feeding tube with her. everyone is still trying to pretend she's fine i think. and is the bipap machine for sleeping? what does it help with? perhaps it's something that would prevent her from choking at night? i don't know.
i wish i could come up with a way to cure ALS. i hate hate hate knowing that my aunt or any of you are suffering. i want so badly to just take it all away and make it all better. sometimes i think about it too hard and i am just shocked that this is happening to my aunt. it's surreal.
sorry for the rambling. and i hate to be a downer. just one of those days, you know? and not many people really understand how you feel unless they're going through the same thing.
love to you all.
nicole