CButter
New member
- Joined
- Nov 21, 2020
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Spokane
Hello Everyone,
Ive been feeling “off” lately. It all started about 2-3 months ago on the tail end of a gastritis/stomach ulcer episode. My right bicep started persistently twitching. I exercise frequently, love to hike, play the drums, and I’m generally fit and active. At first I attributed the twitch to drumming and reptitive use. I even thought maybe the meds for my GI issues may have caused an imbalance that was manifesting this way.
Well, 1.5 months later and my right arm is weak, tired, and fine motor movements in my right hand have diminished. I’m grabbing things differently and it just feels off. Also during this time my right leg has felt weak and I have noticed on a few occasional weird “catches” of the heel as if im not lifting it high enough. I also like to run, but the last run has left me feeling assymetrical weakness.
My right leg ia considerably more sore than the left and my recovery time feels longer than usual after workouts, both upper body and lower body. The muscle twitching has also spread ALL over. It has gotten so bad that over the last week it has begun to interrupt my sleep schedule. I have also had right ear spasms and tinnitus over the last couple weeks and today I found myself talking weird with my tongue and fumbling words.
I made an appointment last week with the first doctor I could get in with at my facility and had a follow up today with my PCP over telehealth. The bloodwork and urine from last week’s appointment is normal as I suspected it would be. At my appointment today I voiced my concern of ALS alongside Lyme disease and a Fibromyalgia/restless leg syndrome combo. My PCP and I both agree that a brain MRI (I would also like a cervical) and an appointment to a neurologist would be wise but does not suspect ALS. I could tell she was a little concerned though.
I studied Neuroscinece for my undergrad and have goals of pursueing a career in medicine. I know quite a bit about this disease already and maybe that is contributing to my worry but, to me, at this point I find my symptoms are highly suggestive of ALS. Im well aware of the sheer power of this disease and life expectancy is not great.
Fortunately, I do not have a wife and kids but I’m worried about how hard this will be on my family, especially my single mother. <snipped>
Any feedback would be appreciated!
Ive been feeling “off” lately. It all started about 2-3 months ago on the tail end of a gastritis/stomach ulcer episode. My right bicep started persistently twitching. I exercise frequently, love to hike, play the drums, and I’m generally fit and active. At first I attributed the twitch to drumming and reptitive use. I even thought maybe the meds for my GI issues may have caused an imbalance that was manifesting this way.
Well, 1.5 months later and my right arm is weak, tired, and fine motor movements in my right hand have diminished. I’m grabbing things differently and it just feels off. Also during this time my right leg has felt weak and I have noticed on a few occasional weird “catches” of the heel as if im not lifting it high enough. I also like to run, but the last run has left me feeling assymetrical weakness.
My right leg ia considerably more sore than the left and my recovery time feels longer than usual after workouts, both upper body and lower body. The muscle twitching has also spread ALL over. It has gotten so bad that over the last week it has begun to interrupt my sleep schedule. I have also had right ear spasms and tinnitus over the last couple weeks and today I found myself talking weird with my tongue and fumbling words.
I made an appointment last week with the first doctor I could get in with at my facility and had a follow up today with my PCP over telehealth. The bloodwork and urine from last week’s appointment is normal as I suspected it would be. At my appointment today I voiced my concern of ALS alongside Lyme disease and a Fibromyalgia/restless leg syndrome combo. My PCP and I both agree that a brain MRI (I would also like a cervical) and an appointment to a neurologist would be wise but does not suspect ALS. I could tell she was a little concerned though.
I studied Neuroscinece for my undergrad and have goals of pursueing a career in medicine. I know quite a bit about this disease already and maybe that is contributing to my worry but, to me, at this point I find my symptoms are highly suggestive of ALS. Im well aware of the sheer power of this disease and life expectancy is not great.
Fortunately, I do not have a wife and kids but I’m worried about how hard this will be on my family, especially my single mother. <snipped>
Any feedback would be appreciated!
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