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Firefighter58

Senior member
Joined
Jun 21, 2016
Messages
726
Reason
PALS
Diagnosis
05/2014
Country
CA
State
ON
City
Oakville
Hello Pals, this is just a little update, just over a year ago I had a peg. put in because I would choke when trying to swallow food and I could not drink liquids without choking.

I don't know the reasons but I just finished my lunch, ham,salami, potato salad, cheese, bread and butter, a bowl of fruit cocktail and a glass of milk. I do it every day now with no problem, but it takes me about an hour to eat it.

I don't know if it is the program I'am on or just teaching myself how to eat again. All my other problems are still the same no better no worse. I still use the PEG twice a day for my meds because they taste so bad.

Just to let you guys know, I feel good just like I did before ALS but I still can't walk without aids and I still can not talk.

Al
 
Good Going, Firefighter ! ! Congrats.
 
Way to go Firefighter. Whatever the reason...I am so happy you were are able to enjoy food again. I am doing the happy dance for you. Believe me...its funny!
 
Good for you!

Kathy
 
Thanks guys I can now have a glass of beer to.

Al
 
I had a peg put in in Oct, fvc<48, so I was told better now than later. I use mine for meds too. We seem to be progressing slow, I was diagnosed in Aug. 2014, the cognitive dissonance between the fact you have a fatal disease and still being able to function is a head scratcher. But It is nice to have a period of grace in there before things get ugly. Hope things keep moving slow for you.
Vincent
 
Al, great to read about your eating (and drinking;)).

Super to hear such a good report.

Steve
 
That's great news!
 
Thanks everyone, just finished a Danish and a glass of 7up.
Al
 
That's great news Firefighter!!!

The iHerbs arrived yesterday and today i have started my husband on your vitamin regime :)
 
Good. for you AKNate, I really hope you guys are as happy with it as I'am. No guarantees but I feel it has helped me and definitely slowed things down and seems to have reversed things at least for awhile, We will see good luck and keep us informed.
Al
 
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