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Markbreton

Distinguished member
Joined
Apr 17, 2006
Messages
102
Reason
Loved one DX
Diagnosis
02/2006
Country
CA
State
Ontario
City
Smiths Falls
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My wife, a nurse, was diagnosed on Feb. 14/2006, Valentines Day, with Bulbal ALS. Happy Valentine's Day! Her first symptom was difficulty with swallowing nd some slight slurring of her speech. These symptoms started very shortly after she tripped and fell, quite hard, hitting her head. We thought that she may have damaged a nerve and that was causing her symptoms, Alas not so. Anyway it took only about 6 months to diagnose ALS. Now almost two years later she can no longer speak, she uses a communication device and takes all of her nurishment through a feeding tube. She cannot swallow anything. She only started disability about two weeks ago, she still can drive and do most things. At this point it seems to be her fine motor skills that are affected, like doing up buttons or her bra, etc.
She is SOOOO strong, much stronger than me. I find myself crying quite often and often asking the good person upstairs to take me instead of her, she is far to good a person to be affected by this disease.
Anyway, Tammy, at a recent local walks for ALS, rallied a team together and raised close to $4,000.00. She is not letting this stop her.
There have been many contraversial dicussion on natural medicine vs traditional medicine. We chose to follow both, within reason, and we do feel that it is helping or at least slowing down the progression. But maybe we are fooling ourselves.
Thant's it for now...Happy holidays everyone.
Mark
 
Ximduni Nesl vu vjot xupfisgamm gusan.Tu tussz juxiwis ev vji teni voni vjev zua jewi vu ci jisi.Zua xomm gopf tu nepz desoph muwoph qiuqmi vu jimq haofi zua dungusv zua epf katv motvip vu zua epzvoni fez us pohjv.Vjot fotieti ot tadj e vissocmi nuptvis epf giimoph jimqmitt apgusvapevimz o vjopl dunit xovj vji xjumi qedlehi.Zuas xogi tuapft moli tadj e xupfisgamm qistup xjun jet fifodevif jis mogi vu jimqoph uvjist.Vjot fotieti juxiwis futpv tiin vu fitdsonopevi.O en tu tussz vjev zua esi jewoph tadj e foggodamv voni duqoph sohjv pux.Xi emm jewi vjuti fezt epf o juqi zua xomm gopf tuni dungusv jisi!Nz jatcepf emtu jet emt epf xet foehputif op 2004..O jewi tqipv nepz e fez op viest us dmuti vu viest...Zua esi tvsuphis vjep zua vjopl! Ovt eneboph jux xi emm tiin vu gopf vji tvsiphvj xjip xi vjopl xi deppuv hu up.Zua xomm ci op nz vjuahjvt epf qsezist.........Hope
 
[c]Jimqmitt viest[/c]

O jewi dsoif nepz nepz viest,O giim tu ephsz ev vonit,cav tiioph zuas tvusz nesl hewi ni e movvmi cov ug juqi,cidaeti zua lpux xjip zua jies vjuti fsiefif xusft vjisi ot PU DASI,O tvesvif vu jzqis wipovomevi op vji fs't uggodi,nz jatcepf ot vji upi xju jet EMT,ji tiint vu ci vjot vuxis ug tvsiphvj sohjv pux,epf ov ot nopf pancoph ev vonit,et o tov jisi ephsz ephsz...O xepvif vu tez vjepl zua gus qutvoph nesl..O niep xi esi op iesmz tvehit jisi ji jet mutv nuwinipv op jot sohjv guuv epf ov ot nuwoph raovi raodlmz vu jot uvjis mih epf esnt,ov tdesit ni jux getv ovt nuwoph! tussz og o sencmif up ov katv fuitpv neli tipti vu ni sohjv pux...
 
Nutv qiuqmi tez ov velit e xjomi gus ov emm vu topl op. Zua'wi ciip jov xovj e coh upi. Zua cuvj qsucecmz piif vu howi zuastimg voni. Xi xomm ci jisi ev iwisz tviq ug vji xez. sihesft, Dopfz
 
Vjeplt. O'wi ciip siefoph e muv ug vji dunnipvt, raitvoupt epf eptxist epf ov't qmietoph vjev vjisi esi tu nepz qiuqmi xommoph vu motvip epf uggis jimq.
VJEPLT TU NADJ IWISZUPI!
Neil
 
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