BoxersRule
Active member
- Joined
- Feb 3, 2008
- Messages
- 37
- Reason
- Learn about ALS
- Country
- US
- State
- al
- City
- birmingham
Hey all- I know basically I have been told to scram get lost etc. I dont know what is going on with me. For one my horomones from this pregnancy are crazy. I am off my a.d.d medications and anxiety pills as well.
I know what I am doing is not fair to my unborn child with all this worry but what can I DO! I cant help I wake up day after day that I am not going to be able to see my little girl take her first steps etc. I type this right now with tears just streaming down my face. Tomorrow I go to the Doctor and I hope they set a induction date. I am 38.5 weeks. He promised me before 39 weeks we could induce. If all is well. I really need my medication....
I know I had a clean emg. @ 5 months into widespread random twitches (no weakness no atrophy) 10 muscles tested from foot all the way up to deltoid. Yes, ok it ruled out limb onset. Now I struggle with "I didnt have my facial muscles tested" etc.
Past week I feel like I am going to stumble over my words or my speech is thick. It isn't like it always. I can concentrate and say everything normal. If I get up in the mornings and test myself its like I can hear myself slur. No one else notices it and they laugh at me when I ask them if I am slurring. July will be 6 months into this malady that has taken my life (literally with worry).
I can do everything with my tongue- side to side fast, up and down fast- make a taco shape out of it...no choking on foods and i can down a drink very fast. I just hate it when I feel like Im gonna stumble or my s's come out with a lisp. I am @ lost on what to do. I mentioned it to my neuro and she wouldnt even think about it. I practically had to make a mockery of myself to get a EMG *in the first place*. She kept saying with your age (28), your gender, your symptoms, no weakness , no atrophy, normal reflexes ...YOU DONT HAVE IT. Finally 2nd visit she did emg of whole right side of body. There wasnt one i-ota found.
Sooo is it possible I have bulbar- als? I know regardless because I have widespread twitching my emg should have been abnormal no matter the stick. Because I have random pops all over. I know anxiety can cause you to stumble over words..WHAT IS SLURRING? is it drunk sounding, is it a lisp?
Im sorry yall. I try to go away and do my own thing- but its very hard. I dont want to keep posting but I just need help. My psychiatrist is about done with me, the neuro, lord if i walk back in there- she may commit me. I know yall are tired of me. Im just soooo hurt. I cant help it.
I dont think I Am being rational myself- I've had this 6 months almost- clean EMG and now I am saying bulbar? those are two different animals arent they? limb onset and bbar?
I dont even expect to hardly get a response. How many times can you tell someone their ok til they believe it.
I know what I am doing is not fair to my unborn child with all this worry but what can I DO! I cant help I wake up day after day that I am not going to be able to see my little girl take her first steps etc. I type this right now with tears just streaming down my face. Tomorrow I go to the Doctor and I hope they set a induction date. I am 38.5 weeks. He promised me before 39 weeks we could induce. If all is well. I really need my medication....
I know I had a clean emg. @ 5 months into widespread random twitches (no weakness no atrophy) 10 muscles tested from foot all the way up to deltoid. Yes, ok it ruled out limb onset. Now I struggle with "I didnt have my facial muscles tested" etc.
Past week I feel like I am going to stumble over my words or my speech is thick. It isn't like it always. I can concentrate and say everything normal. If I get up in the mornings and test myself its like I can hear myself slur. No one else notices it and they laugh at me when I ask them if I am slurring. July will be 6 months into this malady that has taken my life (literally with worry).
I can do everything with my tongue- side to side fast, up and down fast- make a taco shape out of it...no choking on foods and i can down a drink very fast. I just hate it when I feel like Im gonna stumble or my s's come out with a lisp. I am @ lost on what to do. I mentioned it to my neuro and she wouldnt even think about it. I practically had to make a mockery of myself to get a EMG *in the first place*. She kept saying with your age (28), your gender, your symptoms, no weakness , no atrophy, normal reflexes ...YOU DONT HAVE IT. Finally 2nd visit she did emg of whole right side of body. There wasnt one i-ota found.
Sooo is it possible I have bulbar- als? I know regardless because I have widespread twitching my emg should have been abnormal no matter the stick. Because I have random pops all over. I know anxiety can cause you to stumble over words..WHAT IS SLURRING? is it drunk sounding, is it a lisp?
Im sorry yall. I try to go away and do my own thing- but its very hard. I dont want to keep posting but I just need help. My psychiatrist is about done with me, the neuro, lord if i walk back in there- she may commit me. I know yall are tired of me. Im just soooo hurt. I cant help it.
I dont think I Am being rational myself- I've had this 6 months almost- clean EMG and now I am saying bulbar? those are two different animals arent they? limb onset and bbar?
I dont even expect to hardly get a response. How many times can you tell someone their ok til they believe it.