Feeding tubes

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Harold

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Joined
Apr 29, 2010
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16
Reason
Loved one DX
Diagnosis
08/2009
Country
US
State
Kansas
City
Overland Park
Hi:
My wife has ALS. SHe had a feeding tube put in about 2 months ago. About 3 weeks ago she had this changed from the traditional tube to the "button-type" known as a "Mic-Key". Since the button was put in she's had quite a bit of leakage around the insertion point...is this normal?
WHen there's leakage she has a lot of pain ---- a lot like diaper rash. So we put on gobs of Aquaphor and a zinc-oxide ointment. That lasts for a while, but the pain always returns.

I really understated the pain part----it is a lot like a diaper rash, but a LOT more painful.

ANY SUGGESTIONS?
Also, is the leakage normal and does it subside or is it perpetual?
 
Sounds like they put in one that may be too long. Does it seem loose? She should not be having this problem and pain. I hope you get it figured out quickly!
 
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