- Feb 11, 2016
The past week has been rough he seems to have declined. His speech is almost gone . I had to translate for him at the doctor on Monday. Luckily his eye gaze computer should be here next week. Since last week he's started sleeping so much more during the day. Better than he sleeps at night. The doctor is starting him on pain pills. He's reluctant to take them but he's in so much he said he'll give it a try. Because of the weight loss, difficulty eating, and he gets tired eating so he stops not because he's full, he's decided to go with the feeding tube. I'm nervous and have no idea what to expect.