ShellyRenee
Active member
- Joined
- Jun 23, 2005
- Messages
- 30
Hello to all:
This is Shelly from Wisc. wondering if anyone has any advice on feeding tubes. I will be taking mom to the doctor on Monday for a feeding tube consult and then Wednesday she will have it inserted. Problem is I know NOTHING on feeding tubes. Pro's-- con's, I need help. Unfortunately for us I am finding out that doctors are really not too much help. If we don't put the questions out there they just do or do not do whatever they feel. That is another story in it's self but still related to ALS. Anyhow mom is weighing in (her corner) at 96 lbs, she has lost 20 lbs in one year. Her top weight was 136 lbs, that is when she went in to deliver a baby --- what a piggy, huh? She is choking quite a bit, even on water. Her smoking has not stopped infact I believe it is more but she will not admit to that. She still will not talk about this disease. Why are things happening SO FAST? I am trying to help her but it seems to be one thing after another. From this doctor to that doctor, I just wish one of these HIGHLY paid doctors would take her under his wing and say this is what it is and this is what we are going to do. No I have to ask the questions (right or wrong) and then I hear "well you will have to take her to a doctor who treats that". What the heck?! Rrrrr, very frustrating. Talk about rambling, I am sorry.
Any certain feeding tube better than another? ---- from an ALS standpoint that is. How about supplements? high calorie, loads of energy and vitamins. Mom takes in now maybe if she is lucky 800 to 1000 cals a day. For breakfast she will eat a banana which will take about at least a half hour for her to eat and a Boost Plus drink. The drink is 8 oz. and she was telling the other day it took her 1 and 1/2 hrs to drink that. She needs help before she dwindles away.
All advice I will take with a huge thank you.
Shelly :? :?
This is Shelly from Wisc. wondering if anyone has any advice on feeding tubes. I will be taking mom to the doctor on Monday for a feeding tube consult and then Wednesday she will have it inserted. Problem is I know NOTHING on feeding tubes. Pro's-- con's, I need help. Unfortunately for us I am finding out that doctors are really not too much help. If we don't put the questions out there they just do or do not do whatever they feel. That is another story in it's self but still related to ALS. Anyhow mom is weighing in (her corner) at 96 lbs, she has lost 20 lbs in one year. Her top weight was 136 lbs, that is when she went in to deliver a baby --- what a piggy, huh? She is choking quite a bit, even on water. Her smoking has not stopped infact I believe it is more but she will not admit to that. She still will not talk about this disease. Why are things happening SO FAST? I am trying to help her but it seems to be one thing after another. From this doctor to that doctor, I just wish one of these HIGHLY paid doctors would take her under his wing and say this is what it is and this is what we are going to do. No I have to ask the questions (right or wrong) and then I hear "well you will have to take her to a doctor who treats that". What the heck?! Rrrrr, very frustrating. Talk about rambling, I am sorry.
Any certain feeding tube better than another? ---- from an ALS standpoint that is. How about supplements? high calorie, loads of energy and vitamins. Mom takes in now maybe if she is lucky 800 to 1000 cals a day. For breakfast she will eat a banana which will take about at least a half hour for her to eat and a Boost Plus drink. The drink is 8 oz. and she was telling the other day it took her 1 and 1/2 hrs to drink that. She needs help before she dwindles away.
All advice I will take with a huge thank you.
Shelly :? :?