LMargaret1
New member
- Joined
- May 6, 2021
- Messages
- 9
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- OH
Hello all! Looking for feedback, the biting and realistic kind is my favorite, as I wait for my MRI tomorrow and my neurology appointment on 5/13 (though it is virtual, which feels a bit of a waste, don't know if folks have insight on virtual intakes?).
I wonder if I won't end up with an MS diagnosis, but for starters got all my labs back from PCP today. Only thing noted was a severe VIT D deficiency and a high iron level. I believe some autoimmune tests were run, as well as I have a family history of lupus.
I began having noticeable night time fasciculations, the sort of "I am falling off a cliff" kind a few months ago. I didn't think anything of it because I am 37 and I have a full time job, a 10 month old baby boy and am starting my own business. So- I am freaking tired.
What followed was a good bout of intense foot and hand tingling, progressing into fasciculations about my body (mostly shoulder, abdomen and calves). Followed with left arm aches, left hand and left leg weakness. I had a bad motorcycle crash many years ago and have rods in my right femur, so I am much more used to that being my "bad" side.
Anyway, my doctor is that realistic kind of human I appreciate and when I asked if "it could be serious" she said, "I don't know, that is why we will do more tests." So, there it is.
I'm anxious as hell, but also trying to lay off caffeine and my nightly glass of wine, until I know more.
I wonder if I won't end up with an MS diagnosis, but for starters got all my labs back from PCP today. Only thing noted was a severe VIT D deficiency and a high iron level. I believe some autoimmune tests were run, as well as I have a family history of lupus.
I began having noticeable night time fasciculations, the sort of "I am falling off a cliff" kind a few months ago. I didn't think anything of it because I am 37 and I have a full time job, a 10 month old baby boy and am starting my own business. So- I am freaking tired.
What followed was a good bout of intense foot and hand tingling, progressing into fasciculations about my body (mostly shoulder, abdomen and calves). Followed with left arm aches, left hand and left leg weakness. I had a bad motorcycle crash many years ago and have rods in my right femur, so I am much more used to that being my "bad" side.
Anyway, my doctor is that realistic kind of human I appreciate and when I asked if "it could be serious" she said, "I don't know, that is why we will do more tests." So, there it is.
I'm anxious as hell, but also trying to lay off caffeine and my nightly glass of wine, until I know more.