wewillbeatthis
Distinguished member
- Joined
- Aug 10, 2005
- Messages
- 185
Hello ALS Family,
I hope everyone is doing well on this Monday morning.... NY is hot and humid as if we skipped spring and went staight into summer....
I have something I would like to get some feedback on if at all possible:
Dad goes to bed normally around 11:30- 1:00am he has always been one to need a max of 5 hours of sleep. So let's give this weekend as an example. Dad has tons of work and not enough workers and I know it is stressing him... He gets up every morning including sat. and sun this week... He drives 45 min to work, then he gets out his walker and walks up and down little hills within the building, goes through heavy doors, helps the men clean the brushes, mix the paint, and little jobs of this nature. He will then go do some shopping cause he loves to shop.... When dad gets home at around 5pm he is tired he just wants to sit and watch TV. He says to me you know when I do all this work my legs are tired and I feel a bit unsteady like my balence is off. He says I am great all day long but at night I am tired and I need more then the cane cause in the house he will use the cane or walk along the walls.... Is something to be concernd about like things are getting worse or is just from a long day of being on his feet and doing so much?
We also notice at nigt or really by like 4pm his voice is slurred and very slow... Come morning he is walking fast and speaking good again.... Is this all fatigue or progression?
I thank you so much for youre responses....
I also had a question about jerks... Dad gets these jerks which he has had in his right leg for about 5 years... This is the only place.... However, occasionally he will get them in his right arm... You know it is really not a jerk his reflexes are so strong that it is like a spring reaction.... he will reach or something or throw something, or even scratch and when he does it is like it spring back... What is this about?
Thank you in advance for your response..
Jen
I hope everyone is doing well on this Monday morning.... NY is hot and humid as if we skipped spring and went staight into summer....
I have something I would like to get some feedback on if at all possible:
Dad goes to bed normally around 11:30- 1:00am he has always been one to need a max of 5 hours of sleep. So let's give this weekend as an example. Dad has tons of work and not enough workers and I know it is stressing him... He gets up every morning including sat. and sun this week... He drives 45 min to work, then he gets out his walker and walks up and down little hills within the building, goes through heavy doors, helps the men clean the brushes, mix the paint, and little jobs of this nature. He will then go do some shopping cause he loves to shop.... When dad gets home at around 5pm he is tired he just wants to sit and watch TV. He says to me you know when I do all this work my legs are tired and I feel a bit unsteady like my balence is off. He says I am great all day long but at night I am tired and I need more then the cane cause in the house he will use the cane or walk along the walls.... Is something to be concernd about like things are getting worse or is just from a long day of being on his feet and doing so much?
We also notice at nigt or really by like 4pm his voice is slurred and very slow... Come morning he is walking fast and speaking good again.... Is this all fatigue or progression?
I thank you so much for youre responses....
I also had a question about jerks... Dad gets these jerks which he has had in his right leg for about 5 years... This is the only place.... However, occasionally he will get them in his right arm... You know it is really not a jerk his reflexes are so strong that it is like a spring reaction.... he will reach or something or throw something, or even scratch and when he does it is like it spring back... What is this about?
Thank you in advance for your response..
Jen