NervousNick9
New member
- Joined
- Sep 13, 2021
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hello All,
I am a 26 year old male, who may just need a little reassurance. I know that at the age of 26 it is very rare as stated in the Welcome Post, but as most of you know its pretty hard to shake the feeling.
I first came to this sight a few weeks ago as I was afraid of the worst, which was probably caused by Dr. Google. In June 2021 I started noticing twitching throughout my body & now what I believe to have been perceived weakens. I had my first EMG 2 weeks ago to test for limb onset & a physical workup, which my neurologist said all looks perfectly fine. Right as we were getting done, I totally forgot to mention my "Bulbar" issues I was also having. Which was crazy because it was probably my most annoying symptoms. He looked at my tongue while out & at rest and said there definitely is twitching/tremor there but that he's not even gonna bother to do more poking with the EMG as I would have slurred speech of some sort by now. Also, I believe I have read that Bulbar onset it rarer than limbs. So with my age & that, he said it was very unlikely.
I was hoping I could list my current symptoms that have been going on for 3 months now & see if anyone thinks it could be the all sinister. My symptoms are, twitching predominantly on the right side of my face (eyelid, jaw & full tongue). It seems my jaw gets tired quickly, so "weakening" has definitely been on my mind and scaring me half to death. I get a clicking noise in my right side of the jaw every so often when I open or move it. It also does seem that my right cheek is thinner than my left, which my GF has confirmed but not sure if it's always been like that. My right nostril has been completely clogged for most of the 3 months & what seems to be post nasal drip? Pain in the throat especially when pressure to it, mostly on the right side as well. And lastly the nagging throat tightness feeling for 3 months straight. I can swallow pretty much perfectly, sometimes a cough as it went down the wrong pipe. I do also get the occasional noises from my throat like air bubbles or liquids are coming out when at rest.
Does any of this sound like something I should be worried about & should I push for another EMG to test for Bulbar. Or since I already had a full limbs EMG (3 hours) with twitching, it would have maybe been noticed? I do have a follow up in mid October, so I plan on getting my questions in there as well. Any responses would greatly be appreciated.
I would like to add that at the same time I was also diagnosed with Celiac Disease, but was told by my neuro that it rarely causes any type of these issues. My throat problems I hope are just GERD maybe. But again thank you for any responses.
Thank you,
I am a 26 year old male, who may just need a little reassurance. I know that at the age of 26 it is very rare as stated in the Welcome Post, but as most of you know its pretty hard to shake the feeling.
I first came to this sight a few weeks ago as I was afraid of the worst, which was probably caused by Dr. Google. In June 2021 I started noticing twitching throughout my body & now what I believe to have been perceived weakens. I had my first EMG 2 weeks ago to test for limb onset & a physical workup, which my neurologist said all looks perfectly fine. Right as we were getting done, I totally forgot to mention my "Bulbar" issues I was also having. Which was crazy because it was probably my most annoying symptoms. He looked at my tongue while out & at rest and said there definitely is twitching/tremor there but that he's not even gonna bother to do more poking with the EMG as I would have slurred speech of some sort by now. Also, I believe I have read that Bulbar onset it rarer than limbs. So with my age & that, he said it was very unlikely.
I was hoping I could list my current symptoms that have been going on for 3 months now & see if anyone thinks it could be the all sinister. My symptoms are, twitching predominantly on the right side of my face (eyelid, jaw & full tongue). It seems my jaw gets tired quickly, so "weakening" has definitely been on my mind and scaring me half to death. I get a clicking noise in my right side of the jaw every so often when I open or move it. It also does seem that my right cheek is thinner than my left, which my GF has confirmed but not sure if it's always been like that. My right nostril has been completely clogged for most of the 3 months & what seems to be post nasal drip? Pain in the throat especially when pressure to it, mostly on the right side as well. And lastly the nagging throat tightness feeling for 3 months straight. I can swallow pretty much perfectly, sometimes a cough as it went down the wrong pipe. I do also get the occasional noises from my throat like air bubbles or liquids are coming out when at rest.
Does any of this sound like something I should be worried about & should I push for another EMG to test for Bulbar. Or since I already had a full limbs EMG (3 hours) with twitching, it would have maybe been noticed? I do have a follow up in mid October, so I plan on getting my questions in there as well. Any responses would greatly be appreciated.
I would like to add that at the same time I was also diagnosed with Celiac Disease, but was told by my neuro that it rarely causes any type of these issues. My throat problems I hope are just GERD maybe. But again thank you for any responses.
Thank you,