My brother is 12 days in on this trial, and in reading about it, I came across the info about the orphan drug status. Btw, when you hear of “orphan” conditions, I thought it meant rare. I hardly tell anyone about my brother’s diagnosis without them knowing someone, even if not directly, who has, or had ALS. I seem to hear of more people with ALS than Parkinson’s Disease, for example. My impression is it’s a lot more common than I thought.