Nikki J Moderator Joined Mar 22, 2012 Messages 16,384 Reason PALS Diagnosis 04/2014 Country US State MA City Boston Sep 14, 2020 #1 This is an observational study being done by MGH. It can be done remotely so no in person visits needed It includes PLS HSP and SMA as well as ALS REDCap redcap.partners.org
This is an observational study being done by MGH. It can be done remotely so no in person visits needed It includes PLS HSP and SMA as well as ALS REDCap redcap.partners.org
KenM Active member Joined Jun 21, 2019 Messages 64 Reason PALS Diagnosis 03/2018 Country US State NC City Charlotte Sep 20, 2020 #2 thank you!
nona Senior member Joined Oct 1, 2018 Messages 555 Reason PALS Diagnosis 02/2015 Country US State NH City New London Sep 21, 2020 #3 I took this last week, Nikki. It didn't go as deep as I thought it would.
Nikki J Moderator Joined Mar 22, 2012 Messages 16,384 Reason PALS Diagnosis 04/2014 Country US State MA City Boston Sep 21, 2020 #4 I guess they didn’t want to tire you out! . Hopefully the longitudinal data will yield some information
I guess they didn’t want to tire you out! . Hopefully the longitudinal data will yield some information