hopefuldaughter
New member
- Joined
- Mar 18, 2018
- Messages
- 2
- Reason
- Loved one DX
- Country
- US
- State
- IL
- City
- Chicago
Hi and thank you in advance for reading-
My dad is 64 and overall is a healthy, active person. To say we are devastated is an understatement- it seemingly came out of nowhere and has turned our world upside down. He is scheduled for a 5 day evaluation at the Mayo Clinic in Rochester at the end of next month; we are hopeful that once he completes that, we will be able to enroll him in one of the stem cell studies (as briefly suggested by his neurologist). After thoroughly researching these studies and Brainstorm in general, it seems the studies/trials are cut off at age 60? Does anyone have advice or information about these trials and if his age will be an issue? Or just any advice in general to a family who is very early in the process and desperate to slow the progression in any ways possible? My heart goes out to all of you battling or caring for those battling this wretched, awful disease. My hope is that a cure is in the distant future and I vow to work until that is reality.
My dad is 64 and overall is a healthy, active person. To say we are devastated is an understatement- it seemingly came out of nowhere and has turned our world upside down. He is scheduled for a 5 day evaluation at the Mayo Clinic in Rochester at the end of next month; we are hopeful that once he completes that, we will be able to enroll him in one of the stem cell studies (as briefly suggested by his neurologist). After thoroughly researching these studies and Brainstorm in general, it seems the studies/trials are cut off at age 60? Does anyone have advice or information about these trials and if his age will be an issue? Or just any advice in general to a family who is very early in the process and desperate to slow the progression in any ways possible? My heart goes out to all of you battling or caring for those battling this wretched, awful disease. My hope is that a cure is in the distant future and I vow to work until that is reality.