- Nov 18, 2021
- Lost a loved one
Good morning, I'm looking for some guidance here. My father-in-law "FIL" (who is happy to get any info he can from a resource like this) has been having mobility issues lately. I need to provide the health history here. 77YO white male, normal weight, 5'10 or so. Avid walker, as in...miles...
After the long and winding road of 1 year, and really 2++ years of symptoms easing in… today we had an appointment with Kaiser Permanente's super duper neuromuscular specialist, who spent 2 hours examining my FIL, taking great care to review his prior data, clinical exams, EMGS, and lab data.
His verdict...."Motor Neuron Disease". Probably ALS. I had the opportunity to be with him in the room for a diagnosis that nobody wants to hear, but the doctor was extremely professional, thoughtful, and forthright. He was in no hurry to leave. I mean...no hurry. Wanted all our questions. Provided us some guidance. And....essentially said that given FIL's slow progress to date (possibly years of foot dragging) that he is a "slow progresser" likely.
Still, a lot to unpack and digest, and some life changes coming for my parents in law. They live about 10 miles away and may move closer, and basically our goal now is to ensure we provide him all the support and accommodation he needs to keep living his life how he can. His mind seems active and good. Doctor said nutrition and PT are important and basically said "dont stop buying green bananas." The direction is downward, the glide slope seems not super rapid. For now...?
He really wasn't interested in multiple opinions, and not in clinical studies either. He's pushing 80 and I dont blame him. Any resources available here for slow-progressers, what to maybe expect, what to think about? I'm an engineer and tinkerer and can design and build and modify whatever we may need for him. The mental part...not as much. But he was not shocked. I knew we were in the wheelhouse for this but after the last Neuro visit I thought we had moved beyond it. I feel both like "everything is the same" and "everything is different" all at once...