Ruggerhead
New member
- Joined
- Feb 18, 2021
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Thank you for this site as it has been of huge comfort to me, and very imformative, especially for those of us in a bit of Limbo. I have had body wide fassics and other muscle symptoms for about 10 months now, mostly in the calves both sides, but all over at times. I had an emg done in March and that was fine, in that they picked up the fassics but the Dr said in isolation and not associated with other hallmarks of ALS, that they had a stable, benign look. All good, untill now.
IJust had another emg from a different neuro, and he said 'some neuro changes in leg and hands' No fibs or short waves it seems but the report says rare benign fassics found in both hands (benign). Report shows also no sign of ALS. But heres the thing, surely fassics cant have changed pathologically if they are not now indicating something else ie ALS, also they cannot be due to a root lesion as suggested (he is suggesting and old sports injury) as does not make sense as there was a sudden onset of these Fassic's and they are not getting better.
I have read that a new criteria now exists for potential earlier diagnosis in that it now places more importance on FP's than ever before. So is this now a normal or abnormal emg? I seem to be ok on in the clinical's in respect weakness, reflexes and atrophy etc, but that does not always follow either, as in some rare cases fassics have been known to come before clinical weakness and atrophied muscle. When I emailed the last neuro back who did the last emg, he said, 'fassiculations are different in ALS.' But didn't explain how? Do you have to show dennervation and reinnervation in the same muscle, and how does that show on Emg?
I just wondered could anyone shed a light on the fact that FP's may be slightly complex but still not be the type actually seen in ALS. I had hoped that a normal clinical exam with a normal emg would have been enough to quell my nerves, but it appears as if after nearly 10 months, its suddenly not so normal anymore, or perhaps is it regarded as normal in the context of ALS diagnosis?
IJust had another emg from a different neuro, and he said 'some neuro changes in leg and hands' No fibs or short waves it seems but the report says rare benign fassics found in both hands (benign). Report shows also no sign of ALS. But heres the thing, surely fassics cant have changed pathologically if they are not now indicating something else ie ALS, also they cannot be due to a root lesion as suggested (he is suggesting and old sports injury) as does not make sense as there was a sudden onset of these Fassic's and they are not getting better.
I have read that a new criteria now exists for potential earlier diagnosis in that it now places more importance on FP's than ever before. So is this now a normal or abnormal emg? I seem to be ok on in the clinical's in respect weakness, reflexes and atrophy etc, but that does not always follow either, as in some rare cases fassics have been known to come before clinical weakness and atrophied muscle. When I emailed the last neuro back who did the last emg, he said, 'fassiculations are different in ALS.' But didn't explain how? Do you have to show dennervation and reinnervation in the same muscle, and how does that show on Emg?
I just wondered could anyone shed a light on the fact that FP's may be slightly complex but still not be the type actually seen in ALS. I had hoped that a normal clinical exam with a normal emg would have been enough to quell my nerves, but it appears as if after nearly 10 months, its suddenly not so normal anymore, or perhaps is it regarded as normal in the context of ALS diagnosis?
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