Quem
Member
- Joined
- Jun 21, 2017
- Messages
- 10
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- IL
- City
- Chicago
Hi all, i am a 35 year old male.
January- Saw primary for back of neck pain. Prescribed muscle relaxers and suggested massage. Pain persisted, was also getting headaches so ordered a brain MRI.
February - Referred to neuro for non specific spots on brain MRI. Neuro was not too concerned but wants follow up MRI in 12 months. Neck/upper back pain continues.
March- Went back to neuro as my shoulders would now tire quickly doing simple tasks like brushing teeth. Neuro prescribes steroid and PT, MRI of back, and gobs of blood work. Steroid has no effect and other tests are clean.
May - No improvement, and leg fasiculations begin, heaviest in right leg but noticeable in both. True fasics and not random twitching, though i have some hot spots in several places. Right leg "feels" sore. Cramping in foot begins.
Go back to primary about fasics so that he can rule out ALS for me cuz Dr Google said so. He takes one look at my leg fasciculations and says "Thats weird", looks very concerned, tests reflexes, asks me if they are always this brisk (I dont know?) and immediately orders EMG.
June - Swallowing " feels" weird. Lots of phleghm in throat. Yawning causes throat discomfort.
Slurring some words, some hoarseness, and even holding my newborn is causing plenty of discomfort. Fasics continue.
The good - EMG of legs was clean. Why am i here then, i know. Docs concern really freaked me out. Neuro says he will do a spinal tap if i want?
I can still run and golf, albeit with discomfort. I know some of you cant and that is why i held off for a month before posting this. I hate to be "that guy" with a clean EMG and ask if the right areas were tested. I also know im presenting issues in my legs, shoulders, and now bulbar, which is not typical of an ALS presentation from what ive read here.
Every time i convince myself that im fine, i feel my legs and look at them fasiculating, feel my foot cramp, feel my throat "tighten", and strain to hold my newborn, think back to my primarys initial thoughts, and worry again.
Thank you for any thoughts you can share and for your time.
January- Saw primary for back of neck pain. Prescribed muscle relaxers and suggested massage. Pain persisted, was also getting headaches so ordered a brain MRI.
February - Referred to neuro for non specific spots on brain MRI. Neuro was not too concerned but wants follow up MRI in 12 months. Neck/upper back pain continues.
March- Went back to neuro as my shoulders would now tire quickly doing simple tasks like brushing teeth. Neuro prescribes steroid and PT, MRI of back, and gobs of blood work. Steroid has no effect and other tests are clean.
May - No improvement, and leg fasiculations begin, heaviest in right leg but noticeable in both. True fasics and not random twitching, though i have some hot spots in several places. Right leg "feels" sore. Cramping in foot begins.
Go back to primary about fasics so that he can rule out ALS for me cuz Dr Google said so. He takes one look at my leg fasciculations and says "Thats weird", looks very concerned, tests reflexes, asks me if they are always this brisk (I dont know?) and immediately orders EMG.
June - Swallowing " feels" weird. Lots of phleghm in throat. Yawning causes throat discomfort.
Slurring some words, some hoarseness, and even holding my newborn is causing plenty of discomfort. Fasics continue.
The good - EMG of legs was clean. Why am i here then, i know. Docs concern really freaked me out. Neuro says he will do a spinal tap if i want?
I can still run and golf, albeit with discomfort. I know some of you cant and that is why i held off for a month before posting this. I hate to be "that guy" with a clean EMG and ask if the right areas were tested. I also know im presenting issues in my legs, shoulders, and now bulbar, which is not typical of an ALS presentation from what ive read here.
Every time i convince myself that im fine, i feel my legs and look at them fasiculating, feel my foot cramp, feel my throat "tighten", and strain to hold my newborn, think back to my primarys initial thoughts, and worry again.
Thank you for any thoughts you can share and for your time.