gsmiles52
New member
- Joined
- Jun 27, 2018
- Messages
- 2
- Reason
- Lost a loved one
- Country
- US
- State
- VT
- City
- BRATTLEBORO
My brother died last year 10/31/2017, from ALS w/FTD he was 56. His ALS started in 2012 with a small fasciculation in his upper arm. At the time he was a airline pilot, he went to the Dr. and was told it was stress related. The FTD was more of a problem than the ALS and he eventually lost his job. The fasciculations progressively got worse but he didn't develop any weakness in his hands until about 15 months before he passed and has was able to walk right up until the day he passed away. I took care of him for the last 2 years of his life he lived with me.
So to me . . this is very strange and it just hit me about a week ago, and I do know that the odds of this are next to impossible because he is the only person in our family to have had ALS but I started getting fasciculations in my foot and calf up my leg and across the front of my groin area! No pain just constant muscles jumping. Of course everything that has happened to me physically in the last 6 months I'm somehow fitting into this . . I've been tripping on flat surfaces, like my foot just isn't coming up enough, and today I almost fell down my knee has been feeling weird, kind of rubbery/weak.
I am super healthy, height/weight appropriate, 58, female, happy fun hard working-good job, 4 kids, and never, ever go to the doctors. Walk the dog everyday, loves the outdoors, and definitely not health anxious I do have an appt with my GP because of the very strange coincidence of the muscle thing.
Has anyone anywhere every heard of such a thing? Brother - Sister no other relative ALS diagnosis?
Thanks in advance if anyone answers.
So to me . . this is very strange and it just hit me about a week ago, and I do know that the odds of this are next to impossible because he is the only person in our family to have had ALS but I started getting fasciculations in my foot and calf up my leg and across the front of my groin area! No pain just constant muscles jumping. Of course everything that has happened to me physically in the last 6 months I'm somehow fitting into this . . I've been tripping on flat surfaces, like my foot just isn't coming up enough, and today I almost fell down my knee has been feeling weird, kind of rubbery/weak.
I am super healthy, height/weight appropriate, 58, female, happy fun hard working-good job, 4 kids, and never, ever go to the doctors. Walk the dog everyday, loves the outdoors, and definitely not health anxious I do have an appt with my GP because of the very strange coincidence of the muscle thing.
Has anyone anywhere every heard of such a thing? Brother - Sister no other relative ALS diagnosis?
Thanks in advance if anyone answers.