Red1825
New member
- Joined
- May 4, 2023
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- FR
- City
- Marseille
Hi,
My name is Romain, I am 27 years old. I am French so sorry for my poor English.
I would like first to thank you for the help and kindness everyone brings here. Also, I am sorry because I know this forum purpose is to care about people suffering from ALS or people who lives with someone affected with this disease.
I feel not legitimate to post here, even more after the "Read me" thread about symptoms, and what is/what is not ALS.
I also saw 2 doctors telling me I do not have ALS, but it seems they told me that because it is super rare and not after a real clinical exam. But of course, they are very likely to be right even if I would have prefered to visit a neurologist but doctors refused to let me do it).
But still, I feel so anxious, so bad, so desesperate. I am selfish because I will take someone's time reading this thread. I would totally understand that nobody wants to reply to the 453242th thread of someone who is very unlinkely to have the disease. But writting about it helps a little.
Sorry I speak way too much and still did not explain about my conditions and my symptoms.
To start, I think I am in "good" health (physically, probably not mentally). I suffer mostly from asthma and allergies. I also suffer from visual snow syndrom, probably after anxiety attack when I was 18 years old. I also suffer from tinnitus and pain in my left jaw (but again, probably from anxiety). Also, I have tachycardia (I did a blood test and everything was fine except a bit too much triglycerides, so normally I do not have heart issues). I also have a bad blood flow (my mother too) so it happens I have tingling that stops when I get up and walk.
Oh I forgot, my blood test revealed an old Epstein-Barr virus and cytomegalovirus. Also I was infected by Covid19 in January (but I was vaccined with 3 doses of Pfizer so It was not a hard Covid19 for me except shaking and fever).
About why I am here and what symptoms bring me there :
Last friday night, when I was in my bed, I felt my left leg vibrates like a phone. It felt like a phone because it was vibrating for 3 sec, then stopped for around 5 secs, and then vibrates again and and stop etc... (It was only friday night, It never happened since then).
My first (and worst) action was to google it. Of course the first result was ALS and I felt very scared. Even more when I found a french tv show 2 weeks old where a 20 years old woman and another 27 years old woman talked about their ALS and how it started (cramp and contraction in their cases).
After that, I began to feel fasciculations in my left leg. Useless to tell you I barely sleep due to the anxiety I felt at this moment.
When I woke up, I felt my left leg was a bit contracted and painful (or at least weird sensation as weakness or less feeling , especially above my knee).
Later, I also felt fasciculations in my right leg, and also a bit of fasiculations in my arms, hands et back). It is like 40% in my left leg (a little bit more painful than elsewhere) 30% in my right leg and 10% for the rest of the body.
When I walk, I feel like my left leg is a bit weaker than my right (yet my dominant leg is my left). I tried to walk on my toes and it is working but again, I feel like I am more balanced on my right than my left side.
I also feel permanent tingling in my left foot and feel pain in my pinky toe since today (especially when I walk on tiptoe to test my strength).
My left arm is also a bit painful, my little left finger shakes a bit and when I touch my left elbow, it is painful like an irritated nerve.
Finally, last night, my left leg contracted 2 times and moved super fast in the bed unintentionally.
It has been 5 days of poor sleep, big anxiety and I really hope that all I need is psychotherapist and not an EMG...
If someone cares to answer, please tell me what you really think and if it is a possibility I have ALS and do not just tell me it is nothing to reassure me. Just the truth please.
I tried to be be as complete as possible, with every little details, I think I did not forget something but I will add if I remember anything.
Thank you in advance for your kindness,
Have a nice day,
Romain.
I forgot to add that I take multivitamins and magnesium so I do not think I have deficiency that could explain my symptom.
Sorry I cannot edit but I also had a botulinum toxin injection 2 weeks ago in my jaw to reduce pain (masseter and temporal muscle) even if do not think it is related to my symptoms but at least I put the max infos.
My name is Romain, I am 27 years old. I am French so sorry for my poor English.
I would like first to thank you for the help and kindness everyone brings here. Also, I am sorry because I know this forum purpose is to care about people suffering from ALS or people who lives with someone affected with this disease.
I feel not legitimate to post here, even more after the "Read me" thread about symptoms, and what is/what is not ALS.
I also saw 2 doctors telling me I do not have ALS, but it seems they told me that because it is super rare and not after a real clinical exam. But of course, they are very likely to be right even if I would have prefered to visit a neurologist but doctors refused to let me do it).
But still, I feel so anxious, so bad, so desesperate. I am selfish because I will take someone's time reading this thread. I would totally understand that nobody wants to reply to the 453242th thread of someone who is very unlinkely to have the disease. But writting about it helps a little.
Sorry I speak way too much and still did not explain about my conditions and my symptoms.
To start, I think I am in "good" health (physically, probably not mentally). I suffer mostly from asthma and allergies. I also suffer from visual snow syndrom, probably after anxiety attack when I was 18 years old. I also suffer from tinnitus and pain in my left jaw (but again, probably from anxiety). Also, I have tachycardia (I did a blood test and everything was fine except a bit too much triglycerides, so normally I do not have heart issues). I also have a bad blood flow (my mother too) so it happens I have tingling that stops when I get up and walk.
Oh I forgot, my blood test revealed an old Epstein-Barr virus and cytomegalovirus. Also I was infected by Covid19 in January (but I was vaccined with 3 doses of Pfizer so It was not a hard Covid19 for me except shaking and fever).
About why I am here and what symptoms bring me there :
Last friday night, when I was in my bed, I felt my left leg vibrates like a phone. It felt like a phone because it was vibrating for 3 sec, then stopped for around 5 secs, and then vibrates again and and stop etc... (It was only friday night, It never happened since then).
My first (and worst) action was to google it. Of course the first result was ALS and I felt very scared. Even more when I found a french tv show 2 weeks old where a 20 years old woman and another 27 years old woman talked about their ALS and how it started (cramp and contraction in their cases).
After that, I began to feel fasciculations in my left leg. Useless to tell you I barely sleep due to the anxiety I felt at this moment.
When I woke up, I felt my left leg was a bit contracted and painful (or at least weird sensation as weakness or less feeling , especially above my knee).
Later, I also felt fasciculations in my right leg, and also a bit of fasiculations in my arms, hands et back). It is like 40% in my left leg (a little bit more painful than elsewhere) 30% in my right leg and 10% for the rest of the body.
When I walk, I feel like my left leg is a bit weaker than my right (yet my dominant leg is my left). I tried to walk on my toes and it is working but again, I feel like I am more balanced on my right than my left side.
I also feel permanent tingling in my left foot and feel pain in my pinky toe since today (especially when I walk on tiptoe to test my strength).
My left arm is also a bit painful, my little left finger shakes a bit and when I touch my left elbow, it is painful like an irritated nerve.
Finally, last night, my left leg contracted 2 times and moved super fast in the bed unintentionally.
It has been 5 days of poor sleep, big anxiety and I really hope that all I need is psychotherapist and not an EMG...
If someone cares to answer, please tell me what you really think and if it is a possibility I have ALS and do not just tell me it is nothing to reassure me. Just the truth please.
I tried to be be as complete as possible, with every little details, I think I did not forget something but I will add if I remember anything.
Thank you in advance for your kindness,
Have a nice day,
Romain.
I forgot to add that I take multivitamins and magnesium so I do not think I have deficiency that could explain my symptom.
Sorry I cannot edit but I also had a botulinum toxin injection 2 weeks ago in my jaw to reduce pain (masseter and temporal muscle) even if do not think it is related to my symptoms but at least I put the max infos.
