Fasciculations seem to cease fire

jethro

Distinguished member
Joined
Nov 2, 2017
Messages
402
Reason
PALS
Diagnosis
09/2017
Country
HR
State
Croatia
City
ZAGREB
since i'm on IF 18/6 (i know, it is extremely dangerous and it is my turn to speed progression!), my fasciculations ("fibrilations") disapeared app 90%. am i entering final stage, my vision is subjective, normal thing in IF, or something fourth?
intend to proceed with IF for at least 4 months, along with tudca, nicotin mononucleotide+resveratrol and cannabis.
i feel perfect. no foggy, no pain... but without strength. no any kind of medicaments/ pills!
 
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Fusia

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Joined
Oct 26, 2019
Messages
111
Reason
PALS
Diagnosis
08/2019
Country
US
State
MT
City
Big sky country

jethro

Distinguished member
Joined
Nov 2, 2017
Messages
402
Reason
PALS
Diagnosis
09/2017
Country
HR
State
Croatia
City
ZAGREB
Intermittent Fasting
 

nona

Senior member
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Joined
Oct 1, 2018
Messages
506
Reason
PALS
Diagnosis
02/2015
Country
US
State
NH
City
New London
I am probably in final stages and have minimal fasiculations. I don't take in many calories, just ~950 a day.
 

jethro

Distinguished member
Joined
Nov 2, 2017
Messages
402
Reason
PALS
Diagnosis
09/2017
Country
HR
State
Croatia
City
ZAGREB
nona, it doesnt have to be that way.
there are pals who spend whole life in a wheelchair, dont knowing that everything depends on their physiotherapist. if they take it as "they had luck", i see it like "they werent informed".
IF? it doesnt count calories, but time when they were taken (IF activates autophagy which seems to be corrupt in als).
started 11 months ago for a month, but i was too weak to continue. i had 79 kg, now i am on 85.
 

rnewton60

New member
Joined
Mar 1, 2021
Messages
8
Reason
PALS
Diagnosis
11/2019
Country
US
State
CA
City
Fremont
I have bulbar onset ALS since 11/01/19. As most of you know, this is the fastest form of ALS you can have and from diagonoses to death is 22 months. So I am 17 months in now and coming up on the finish line. I have lost 70lbs, and continue to go down three of so pounds a week no matter what I can put in my feeding tube or my mouth. I am still mobile and I attribute that to Radakava infusions. When I was five days starting a course of treatment, my fasciculations got real bad in my arms and legs. But after two treatments (out of ten) they went away and subsided down to almost nothing.
 
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