Fasciculations.....is the info on here true?

[jojomedd]

The site says fasciculations on their own aren't ALS..so why do people on other sites say that was their first and only symptom to start with? I have had fasciculations for 6 months and am really concerned. They started in my legs but I get them everywhere including my tongue. I have no weakness but I do have bilateral thigh pain, bilateral hand pain with numbness and various other issues. I have mildly elevated CRP which I read can be an indication. Would welcome any comments

 

[lgelb]

My comment is that you should see a doctor who can baseline your strength and rule out any systemic such as might be suggested by the CRP. And if you have done that, you should not worry about ALS, for which fascics without impairment are not a concern, just as you have read here.

Other sites may have various agendas, honest misremembering, etc. If you are referring to a sticky here, if we did not think it was "true," it would not be posted as a reference. To reduce the fascics and/or how troublesome they are to you, it is always worth looking at nutrition, hydration, bodywork, sleep, stress, and ergonomics. Benign fascics also feed on each other, so ipso facto the more engaging activities you undertake, the less likely they are to take over your life.

 

[jojomedd]

Thank you for your reply. I have seen numerous doctors, both nhs and private. I have seen a leading consultant neurologist twice and have had emh, ncs and various mris. They say nothing wrong neurologically. My hormones are indicating menopause. My dog has more estrogen than me! I just can't get this out of my head!

Are you a a are of CRP being mildly elevated with ALS? My neutrophils were also raised but are now ok. I had polymyalgia rheumatica and was on a reduction regime which would explain this. I also have morning headaches and a constant humming in my head