ConcernedSympt
New member
- Joined
- Jan 21, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- TX
33 year old male and grateful to have found this forum. I greatly appreciate your help in advance. I woke up about 6 months ago with twitching of my quadricep in my leg. Over the course of the following days, I started to twitch in many other places - shoulder, calfs, eyelid, and eventually even my fingers and toes started to wiggle or move on their own. I have had two EMGs, an MRI, and no real diagnosis, but my twitching has gotten much better but still feel the occasional "pop". There was one point about a month ago where the twitching in the bottom of my feet were so intense I could see "waves" through the arch of my feet.
Approximately one and a half months ago, I was riding my bike through a doorway and clipped my right pinky finger (ouch) between my handlebars and the doorway frame. It definitely hurt, but seemed to get better over the following week or two. - Then about 1 month ago, I noticed that that exact pinky finger started to "curl in" to the rest of my fingers. (it now sits under my ring finger when I close my hand). Additionally, on the outside of that same hand, on the back of my hand by my pinky finger, there's a crater, like a sunken in spot. My pinky still has full function, and I can still grab a pull up bar and hang from it with just that hand, etc - but I have noticed soreness on the backside of that hand. The soreness happens even when I am just looking down at my hand and moving it from left to right at the wrist.
I have read some cases in the "recently diagnosed" forum, about folks who have had negative emgs and then sometimes even 3 or 4 emgs later, 3 years down the road they test positive for als.
My Questions:
Is this possibly ALS, or 100% yes, or 100% no?
Do you think I should push for a 3rd EMG?
Does Atrophy or Weakness come first? (and is this absolute, meaning is it always one before the other, or does it vary?)
Aches and Pains, I feel some aches/pains in my pinky and forearm as well as my wrist - mainly depending on how I move them. Does this sound more like some sort of injury?
I understand this might be anxiety induced, but given these recent pinky finger issues after 6 months of body-wide (intense) muscle twitching, it does feel strange that my pinky finger started to curl in and then receive a "dent" that is on the backside of my hand on the other side of my pinky finger, (noticeable by my loved ones not just me). ALS sounds like a very complicated disease to me and so I really appreciate your help.
Approximately one and a half months ago, I was riding my bike through a doorway and clipped my right pinky finger (ouch) between my handlebars and the doorway frame. It definitely hurt, but seemed to get better over the following week or two. - Then about 1 month ago, I noticed that that exact pinky finger started to "curl in" to the rest of my fingers. (it now sits under my ring finger when I close my hand). Additionally, on the outside of that same hand, on the back of my hand by my pinky finger, there's a crater, like a sunken in spot. My pinky still has full function, and I can still grab a pull up bar and hang from it with just that hand, etc - but I have noticed soreness on the backside of that hand. The soreness happens even when I am just looking down at my hand and moving it from left to right at the wrist.
I have read some cases in the "recently diagnosed" forum, about folks who have had negative emgs and then sometimes even 3 or 4 emgs later, 3 years down the road they test positive for als.
My Questions:
Is this possibly ALS, or 100% yes, or 100% no?
Do you think I should push for a 3rd EMG?
Does Atrophy or Weakness come first? (and is this absolute, meaning is it always one before the other, or does it vary?)
Aches and Pains, I feel some aches/pains in my pinky and forearm as well as my wrist - mainly depending on how I move them. Does this sound more like some sort of injury?
I understand this might be anxiety induced, but given these recent pinky finger issues after 6 months of body-wide (intense) muscle twitching, it does feel strange that my pinky finger started to curl in and then receive a "dent" that is on the backside of my hand on the other side of my pinky finger, (noticeable by my loved ones not just me). ALS sounds like a very complicated disease to me and so I really appreciate your help.