- Joined
- Aug 28, 2013
- Messages
- 2,869
- Reason
- PALS
- Diagnosis
- 12/2018
- Country
- US
- State
- NC
- City
- Get Real
I’ve been reading a lot of Threads and posts concerning Primary Lateral Sclerosis.
And… this sub-Forum has been relatively quiet. Not to cause a stir but maybe create some discussion.
If you have a confirmed or possible diagnosis of PLS and you are having fasciculation they are real but… fasciculation is not related to Primary Lateral Sclerosis.
In PLS if an EMG that shows no evidence of chronic denervation which is the true trigger (cause) of fasciculation in an honest (confirmed) diagnosis of ALS
If you have a diagnosis of PLS (or possible) and you talk to your Neurologist about fasciculation you will get, 99% of the time, get a vague answer. It would be extremely rare for a Neurologist to tell you your fasciculations are physically part of PLS.
Ok, Karen and others… your opinions.
And… this sub-Forum has been relatively quiet. Not to cause a stir but maybe create some discussion.
If you have a confirmed or possible diagnosis of PLS and you are having fasciculation they are real but… fasciculation is not related to Primary Lateral Sclerosis.
In PLS if an EMG that shows no evidence of chronic denervation which is the true trigger (cause) of fasciculation in an honest (confirmed) diagnosis of ALS
If you have a diagnosis of PLS (or possible) and you talk to your Neurologist about fasciculation you will get, 99% of the time, get a vague answer. It would be extremely rare for a Neurologist to tell you your fasciculations are physically part of PLS.
Ok, Karen and others… your opinions.