Far Infrared Radiation (5µm to 20µm wavelength)

Status
Not open for further replies.

samy

Member
Joined
Nov 15, 2007
Messages
10
Reason
Loved one DX
Country
CA
State
Ontario
City
Toronto
Hi Everybody,

I was wondering if anyone has heard about this possible treatment "Far Infrared Radiation (5µm to 20µm wavelength)" for ALS. I think this is the link to read more about it http://clinicaltrials.gov/ct2/results?term=Amyotrophic+Lateral+Sclerosis&recr=Open&cntry1=NA:CA
I had emailed them about getting my father into the trial and when they replied one of the things which gave me some concern is they want $1500 for the equipment. I always thought that if it was a clinical trial all costs were covered. If anybody has some info about this please let me know!

Thanks,

Doug
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi Doug. I've sent an email to my Neuro asking for info. I'll let you know when I hear back.
AL.
 

wright

Very helpful member
Joined
Jan 12, 2008
Messages
1,160
Country
US
State
xx
City
xxxx
People involved in clinical trials are not asked for money. Studies are funded by either the government or the private sector (e.g. pharmaceutical companies) and those funds go towards equipment, drugs, etc.

I also did a literature search for both Kwasi Donyina, Ph.D. (the contact for the study) and Francis Sam, M.D. (the principal investigator) and they have not published a single study.

In my opinion, it's a phony study.
 

wright

Very helpful member
Joined
Jan 12, 2008
Messages
1,160
Country
US
State
xx
City
xxxx
There are a limited number of studies with infra-red light and the only thing I've seen is that it increases blood flow, mainly to the skin. Other than that, no other benefits at all.
 

patricia1

Very helpful member
Joined
Sep 18, 2006
Messages
1,149
Reason
PALS
Diagnosis
7/1999
Country
US
State
newjersey
City
lopatcong NJ
Well that stinks! Another dead end Surprise Surprise!:cry:
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
I wonder if the site is bogus. It sure looks legit. My neuro usually gets back to me quickly but hasn't. If these Toronto people are real researchers he'll know them.
AL.
 

ZenArcher

Senior member
Joined
Feb 22, 2007
Messages
672
Reason
PALS
Diagnosis
02/2007
Country
US
State
PA
City
McEwensville
Go outside on a sunny day. Its a lot cheaper and you get exposed to Far IR.

Better yet go spend an extra grand and get a 3 person sauna with Far IR.
 

Patsy

Distinguished member
Joined
Feb 16, 2005
Messages
149
Reason
PALS
Diagnosis
09/1998
Country
CA
State
Ontario
City
Kapuskasing
hi everyone;
I sent Myrna (clinic nurse) the information that was sent to me for this study, but I have not gotten a reply yet. Al, keep us posted.
Sounds fishy to me. Can they really ethically discriminate on the basis of your location?
Patsy
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Still waiting for Zinman to contact me. He must be out of town. Usually get an answer in 1-2 days.
AL.
 

samy

Member
Joined
Nov 15, 2007
Messages
10
Reason
Loved one DX
Country
CA
State
Ontario
City
Toronto
Hi Al,

i was wondering if your neuro ever got back to you about this?
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Not yet. I'm thinking maybe he's on holidays.
AL.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Here's what my Neuro had to say.
Never heard of these guys and science doesn't make a whole lot of sense. The trial is registered with NIH but they would have to get ethics approval and permission from Health Canada to proceed.

Also, as far as I know you cannot charge patients to be in studies.

LZ

PS Our Li study has secured funding. We hope to start in Nov or Dec of this year. I'll let you know when we get closer to the start time for advertising as there may still be hurdles.

AL.
 
Status
Not open for further replies.
Top