I know exactly what everyone is talking about. Family and friends don't come or call. At first you feel so isolated. But, then you start to realize that people really don't know what to do. My favorite is the standard card that says " if you need anything, please call". What a cop out! A phone call would be fantastic. People are really afraid of ALS. Most of us were probably real go getters in life. I know I was. I was the one that took charge and made things happen. I always tried to do for others thinking that if I ever needed anything one day, my good deeds would come back to me. I was wrong. For the most part people only consider themselves and their needs. Which is sad. But, our society is very "me" oriented and when something like this happens people really can't work it into their schedules. It is hard on my kids, they are in their 20's and for the most part they are in denial. Can you blame them. It is hard to watch your mom turn into a vegetable. We had a huge 4th of July party and I invited friends that I haven't seen in 20 years. They all came, but only one has contacted me since to see if she could come over for lunch. The only person that I can truly count on is my husband. I thank God that I have him. We all need one person that is our rock. It is a lonely disease. I think that most terminal illnesses are like this. People not mean to be selfish, they just don't want to be reminded that our life on earth is not guaranteed.