Pauls and others
I really think part of the problem may also be not understanding what ALS is and the fact that someone cannot CATCH it by visiting us. It's almost like they associate anything with letters for a disease with aids or something. I know they have trouble trying to know what to say to comfort us, but just visiting us and listening sometimes helps more than anything they could say. That is, while we can still talk.
To others who have not known someone who has had ALS and the progress of the disease it would help if they would at least look it up on the internet and try to understand what we face everyday. We know we are dying, just not exactly when, and one of the worse feelings in the world is to feel your are dying alone, with no one to be there to care and comfort you in the process.
Education about ALS would probably help our friends and loved ones who have just vanished to let us die alone. Dang that sounds morbid, but it's true. And it really hurts when you have friends who know all about ALS and still stay away. I think it takes a brave person to face death, whether it's your own, or a friends. But they need to face it, because it's coming for all of them at one time or another. The bible says it's appointed unto man once to die, and after that the judgement.
Our friends will have to answer for their actions later, but we will all be answering for ours soon. Have you settled up with God? If you lack peace about dying them maybe you still have something that needs to dealt with about your relationship with him. No one can answer that but you.
God Bless,
Big AL
