Diane123
New member
- Joined
- Feb 28, 2018
- Messages
- 3
- Reason
- Friend was DX
- Diagnosis
- 02/2018
- Country
- CA
- State
- Ontario
- City
- Toronto
In another thread I explained that I didn’t think I’d be able to be enough support for my boyfriend who lives with his mom and sister.
He and I have been together for 5 years but have been becoming a bit distant since my daughter died 7 months ago. I’ve been needing time to myself . But then he was diagnosed with ALS.
I told him I couldn’t be his only support and encouraged him to tell his sister.
Now we both regret it. The first thing she did is tell him to go on a cleansing diet of only fruits and vegetables. It angered me because he knows how to eat, he doesn’t need cleansing and he has diabetes, so he can’t just mess around with his diet.
He doesn’t need someone other than doctors telling him what to do, he just needs some support. He was crying for days so I went with him to the doctor and he got some sleeping pills and some anti-anxiety meds.
Just now she woke him up. She actually went into his room and woke him up. He hasn’t been sleeping well as you can imagine.
She wanted him to tell their parents. He got very stressed out again and couldn’t go back to sleep. He did tell her that he doesn’t need the extra stress right now, he just needs to get through to the end of the month. But he regrets telling her and I regret encouraging him to do so.
He has no one else but me that will just be supportive. His family is both religious and from cultures of superstitions. Him and I are atheists and lovers of reason and science.
How do you deal with family members that want to take over or control you? It’s such a scary thing when you realize you are losing control over your own body.
I can’t take care of him full time, I have my surviving daughter and our future to think of. I will be there as much as I can for him but he’s stuck in that house with women who believe a cleansing is going to fix this, or that some milk and honey or an amulet will work.
Does anyone have experience with this kind of non-support? How do you take control in this situation? The person with ALS I mean?
He and I have been together for 5 years but have been becoming a bit distant since my daughter died 7 months ago. I’ve been needing time to myself . But then he was diagnosed with ALS.
I told him I couldn’t be his only support and encouraged him to tell his sister.
Now we both regret it. The first thing she did is tell him to go on a cleansing diet of only fruits and vegetables. It angered me because he knows how to eat, he doesn’t need cleansing and he has diabetes, so he can’t just mess around with his diet.
He doesn’t need someone other than doctors telling him what to do, he just needs some support. He was crying for days so I went with him to the doctor and he got some sleeping pills and some anti-anxiety meds.
Just now she woke him up. She actually went into his room and woke him up. He hasn’t been sleeping well as you can imagine.
She wanted him to tell their parents. He got very stressed out again and couldn’t go back to sleep. He did tell her that he doesn’t need the extra stress right now, he just needs to get through to the end of the month. But he regrets telling her and I regret encouraging him to do so.
He has no one else but me that will just be supportive. His family is both religious and from cultures of superstitions. Him and I are atheists and lovers of reason and science.
How do you deal with family members that want to take over or control you? It’s such a scary thing when you realize you are losing control over your own body.
I can’t take care of him full time, I have my surviving daughter and our future to think of. I will be there as much as I can for him but he’s stuck in that house with women who believe a cleansing is going to fix this, or that some milk and honey or an amulet will work.
Does anyone have experience with this kind of non-support? How do you take control in this situation? The person with ALS I mean?