Family member recently diagnosed

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chaddy

New member
Joined
Feb 8, 2007
Messages
3
Reason
Loved one DX
Country
England
State
Devon
City
South Brent
Hi,

My sister in law has recently been diagnosed with MND (we think ALS - upper and lower). We are extremely concerned that She and her partner have not been given any advice re support groups etc. I am trying to find positive stories on the WWW. It seems to be a bit of a mixed bag with varying opinions on quality of life, diagnosis, time scales etc. Please can anyone offer advice on really good positive things?

Thankyou:?

Chaddy
 

Paty

Distinguished member
Joined
Apr 1, 2006
Messages
194
Reason
PALS
Country
Mexico
State
Baja California
City
Mexicali
Welcome Chaddy

Chaddy welcome to what I call OUR LITTLE HOUSE ON THE PRAIRIE, you got to a wonderful place, you can ask for advice there are wonderful people here that can help you , your sister in-law and her partner.

Sorry I have to go feed my husband, will see you later.

Sincerely,

Paty
Husband's Caregiver
Baja California, Mexico
 

quadbliss

Distinguished member
Joined
Dec 12, 2006
Messages
392
Reason
PALS
Diagnosis
07/1998
Country
US
State
California
City
Benicia
Hi Chaddy,

Welcome to the group. I have had ALS for over 8 years. I am now paralyzed from the neck down, but living a more fulfilling life than ever. For more info please take a look at my website. :-D

Mike
 
Joined
Apr 20, 2006
Messages
5
Reason
Loved one DX
Country
CA
State
Ontario
City
Whitby
Welcome Chaddy

Hi Chaddy...welcome to the most wonderful place to talk to people and get advice....
Lisa
 

JACKIEMAX

Distinguished member
Joined
Jan 22, 2007
Messages
159
Country
US
State
TN
City
Baxter
welcome to the group

:? welcome - this group has been a life saver to myself and my husband. we were only given info from drs. who had not had als, just treated some. so, i truly believe the lord led me to this forum, and i have found a wealth of info here that i otherwise would never have known. no, it isn't all happy and cheerful, but als is not a happy and cheerful disease, but what you read here will be so very helpful to you. i am a care giver, and don't have the disease, but i watch my husband get weaker every day, and i watch his hope and dignity slip away also. the hope we have is that there will someday be a cure for this horrible disease, and others won't have to go through this. i read these posts every single day, and find something new that helps me, and i hope others do also. i just wish i was as brave as my husband is - i'm the one who sheds the tears and breaks down - not him. maybe he does this for my sake - i don't know, but i know i love and appreciate him for it. keep coming back. jackie
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi chaddy. Welcome to our forum. I've sent a message to one of our members in the UK asking her to send you some information. Hopefully she will check her messages over the next few days and we will be able to help you out.
AL.
 
J

Jeannie

Guest
Thanks Al

Hi Chaddy, Please check your private messages

Jeannie x
 

MtPockets

Very helpful member
Joined
Jun 1, 2006
Messages
1,528
Reason
PALS
Diagnosis
05/2006
Country
US
State
Ms
City
Gulfport
Hi Chaddy,
Welcome to the life jacket in the midst of the storm. That's what the forum is to me. Something that might help if you have a particular question check the search link above and it will list comments about a lot of different topics. Otherwise, just jump in and ask anything you need help with and we will do our best to help you.
God Bless
Capt. AL
 

chaddy

New member
Joined
Feb 8, 2007
Messages
3
Reason
Loved one DX
Country
England
State
Devon
City
South Brent
Thank you AL

Jeannie has been in touch and we have visited her website which has opened a new world of PALS. We only know of my Sister in law having ALS but thanks to you we are now in a much better position to understand and therefore support her.

Again, thank you

Chaddy
 

chaddy

New member
Joined
Feb 8, 2007
Messages
3
Reason
Loved one DX
Country
England
State
Devon
City
South Brent
To all who have replied and helped us to begin what will hope fully be a fairly long journey. If I do not manage to reply to each individual please do not be offended. This is the first time I have ever used a Forum and I am still learning! What I will say is that you have already made us feel extremely welcome and placed us in a much better position to offer the support and encouragement my sister in law needs. My wife will also be learning how to use the forum so do not be surprised to hear from her in the not too distant future.

Once again

Thank you all

Chaddy
 
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