Stef3
New member
- Joined
- Feb 1, 2024
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
Hello, first of all, I thank everyone for taking the time to read and respond to the doubts of so many people frightened by this terrible disease.
I posted here almost 10 months ago. Family History and fasciculations
As I mentioned in the title, I have two cases of ALS in my family, which I explain below:
My mother had two brothers. One of them died young, before the age of 50, and the other was diagnosed with the disease in 2001 and passed away a few months later. The other case is of a cousin, the son of this other brother of my mother who did not die from the disease. This cousin was diagnosed with ALS and is now fighting against it, entering his sixth year of battle.
It is worth noting that my mother is well, at 73 years old, and shows no symptoms or diagnosis.
This cousin of mine did not undergo genetic testing, unfortunately, so we cannot know if there is a gene and what that gene would be.
My case: I am 34 years old, and I started experiencing fasciculations all over my body 18 months ago. I have seen two neurologists, neither of whom specialized in ALS. I had two EMGs, the first one after 8 months (CLEAN) and the second one 12 months after the onset of fasciculations (CLEAN). I know that having two negative EMGs is an important piece of information, but it is very difficult to live with the fear and the fasciculations. The fasciculations serve as a constant reminder of the possibility and fear of having this disease and seeing my child suffer from the situation.
It has been a tough time for my mental health.
In the past week, I felt a slight weakness in my shoulder while training at the gym. I feel that my left shoulder is tiring/failing some repetitions before my right. This has raised my doubts and fear, and I am now seeking a specialized center.
In your experience, do you believe that these EMGs after a year are a strong indicator that my fasciculations are benign? Could I, after more than 18 months of just fasciculations, be starting a process of weakness and muscle loss?
I can lift weights like 12 kg in lateral raises for shoulders, doing about 15 repetitions on the right side and 12 on the left side. I feel that the left side resists less and tends to tire faster. I don’t know if maybe something in the cervical area or a trapped nerve could be causing this slight difference in strength.
Is weakness in ALS something clear? Or does it cause doubts at the beginning? I can do everything with my body; I only feel this slight difference in strength, which didn’t exist before.
Thank you for reading and commenting.
I posted here almost 10 months ago. Family History and fasciculations
As I mentioned in the title, I have two cases of ALS in my family, which I explain below:
My mother had two brothers. One of them died young, before the age of 50, and the other was diagnosed with the disease in 2001 and passed away a few months later. The other case is of a cousin, the son of this other brother of my mother who did not die from the disease. This cousin was diagnosed with ALS and is now fighting against it, entering his sixth year of battle.
It is worth noting that my mother is well, at 73 years old, and shows no symptoms or diagnosis.
This cousin of mine did not undergo genetic testing, unfortunately, so we cannot know if there is a gene and what that gene would be.
My case: I am 34 years old, and I started experiencing fasciculations all over my body 18 months ago. I have seen two neurologists, neither of whom specialized in ALS. I had two EMGs, the first one after 8 months (CLEAN) and the second one 12 months after the onset of fasciculations (CLEAN). I know that having two negative EMGs is an important piece of information, but it is very difficult to live with the fear and the fasciculations. The fasciculations serve as a constant reminder of the possibility and fear of having this disease and seeing my child suffer from the situation.
It has been a tough time for my mental health.
In the past week, I felt a slight weakness in my shoulder while training at the gym. I feel that my left shoulder is tiring/failing some repetitions before my right. This has raised my doubts and fear, and I am now seeking a specialized center.
In your experience, do you believe that these EMGs after a year are a strong indicator that my fasciculations are benign? Could I, after more than 18 months of just fasciculations, be starting a process of weakness and muscle loss?
I can lift weights like 12 kg in lateral raises for shoulders, doing about 15 repetitions on the right side and 12 on the left side. I feel that the left side resists less and tends to tire faster. I don’t know if maybe something in the cervical area or a trapped nerve could be causing this slight difference in strength.
Is weakness in ALS something clear? Or does it cause doubts at the beginning? I can do everything with my body; I only feel this slight difference in strength, which didn’t exist before.
Thank you for reading and commenting.
