lydia
Senior member
- Joined
- Jan 25, 2007
- Messages
- 682
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- US
- State
- ny
- City
- buffalo
Princess,
So I googled neuromyotonia (couldn't help it) and it just amazes me how all these neurological scenarios sound so much like each other. You said your symptoms are getting worse? What is happening now? Do your toes still act up? Mine did the same thing you described earlier but have quieted down..I am happy you got a diagnosed but wonder about your neuro's comment about some cases "turning into" ALS...you had an EMG, right? Does neuromyotonia have a characteristic showing on an EMG?
I saw a description of something called myokymia (continuous fine vibrating muscle movements which apparently can be seen) when reading about neuromyotonia and wondered how it was different than fasciculations. Anyone know?
Lydia
So I googled neuromyotonia (couldn't help it) and it just amazes me how all these neurological scenarios sound so much like each other. You said your symptoms are getting worse? What is happening now? Do your toes still act up? Mine did the same thing you described earlier but have quieted down..I am happy you got a diagnosed but wonder about your neuro's comment about some cases "turning into" ALS...you had an EMG, right? Does neuromyotonia have a characteristic showing on an EMG?
I saw a description of something called myokymia (continuous fine vibrating muscle movements which apparently can be seen) when reading about neuromyotonia and wondered how it was different than fasciculations. Anyone know?
Lydia