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arlie

Member
Joined
Dec 18, 2007
Messages
15
Diagnosis
10/2007
Country
ca
State
ontario
City
toronto
hello out there

my name is arlene-i am a religous jewish middle aged woman

i was diagnosed at sunnybrook hospital[toronto] in october with familial als

my speech is affected and i would like to talk to people who have the same symptom or familial als-my brothers als started in his legs-my father with his speech
 

anne

Distinguished member
Joined
Jun 22, 2006
Messages
157
Country
CA
State
ontario
City
unionville
Hi Arlene. Welcome to the forum. Everyone on this forum are very helpful.

My mother passed away in September /07 with motorneuron disease with bulbar symptoms. She too was diagnosed at Sunnybrook Hospital. She was under the care of Dr. Zinman and Dr. Webster. I am certain you met Myrna Moore. She is very supportive and has much information to offer. My mom started off having hoarseness in her voice and then it became slurred, she had problems with drooling and swallowing. She had problems with phelgm. Unfortunately this past June she started getting short of breath on any type of exertion. Everyone progresses at different rates. Take one day at a time and deal with the situations as they occur.

God Bless. Anne
 

arlie

Member
Joined
Dec 18, 2007
Messages
15
Diagnosis
10/2007
Country
ca
State
ontario
City
toronto
so sorry about your mother-arlene
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Welcome arlie. Sorry about the diagnosis. I have limb onset and go to Sunnybrook as well. Hope we can be of some help along the way.
AL.
 
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