v6a5
New member
- Joined
- Feb 28, 2018
- Messages
- 3
- Reason
- Loved one DX
- Country
- DK
- State
- Denmark
- City
- Copenhagen
Hello,
I am new here, so please bear with me if I break any rules, and feel free to delete this thread.
My grandfather passsed away aged ~65 from ALS after having been ill for 4 years. His brother still suffers from ALS, but he was diagnosed much earlier, almost 20 years ago. His illness moves very slowly and seems to have almost stopped. No one else in my family have suffered from ALS, and we have checked the geneology many generations back.
In the last years, I had a lot of anxiety and worry about whether the disease is familial. Worry about my father, my siblings and myself.
However: I talked to my father about this today, and he told me that both my grandfather and his brother had undergone genetic testing, and that it was found that two different genes were responsible for the disease.
My question is: Does this mean that this isn‘t familial ALS?
I would much appreciate any answers on this as I couldn‘t find anything online (which probably means this situation is quite rare), and sorry again if I have broken any rules if the forum.
Thanks.
I am new here, so please bear with me if I break any rules, and feel free to delete this thread.
My grandfather passsed away aged ~65 from ALS after having been ill for 4 years. His brother still suffers from ALS, but he was diagnosed much earlier, almost 20 years ago. His illness moves very slowly and seems to have almost stopped. No one else in my family have suffered from ALS, and we have checked the geneology many generations back.
In the last years, I had a lot of anxiety and worry about whether the disease is familial. Worry about my father, my siblings and myself.
However: I talked to my father about this today, and he told me that both my grandfather and his brother had undergone genetic testing, and that it was found that two different genes were responsible for the disease.
My question is: Does this mean that this isn‘t familial ALS?
I would much appreciate any answers on this as I couldn‘t find anything online (which probably means this situation is quite rare), and sorry again if I have broken any rules if the forum.
Thanks.
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