KristieOz
New member
- Joined
- Sep 18, 2022
- Messages
- 8
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- AU
Hi all,
Background: I am 44/yo f with family history of mnd (both my uncles (mum’s brothers) sadly diagnosed and passed, and I since have discovered evidence of Mnd going back on my mum’s father’s side for several generations. Onset ages vary from 20’s to 80’s. Progression rates also vary.
My symptoms: I had vaguely been aware that my hands had felt clunky or less nimble when cooking etc for several months but didn’t think much of it until late August when I was hanging out washing and my ring and pinky finger couldn’t seem to extend up and over the line whilst I was pegging the clothes. That stopped me in my tracks as several days before my left hand had gotten stuck in a painless claw-like position after I’d been holding something and I was able to painlessly stretch it out and thought I was just dehydrated or something until the washing line incident.
I also have some weakness in my right front ankle that has progressed up outer calf (Feels like I’m recovering from a ligament injury or something, but obviously have no such injury).
All over body twitching has also started about 2 weeks ago when at rest.
Today my left hand feels worse than the right, it aches like it’s about to cramp when I use it, my fingers feel stiff and uncoordinated and this morning I found it harder than usual to unclip a container lid while getting breakfast. My wrists are also clunking and it’s difficult to release small things from my hand when I’ve picked something up. It’s like my joints are too stiff or something.
Medically: I have been to my GP and had an mri of my brain and cervical spine. Both were clear. Strength tests performed by gp were fine, but he referred me to a neurologist because of my ongoing symptoms and family history. His referral letter unfortunately queries whether it’s early onset mnd. I see the neurologist next week.
Obviously I’m terrified. I have an almost 7yo boy and I feel I’m getting worse daily. I know I can only be diagnosed by my neurologist, but does this sound familiar at all?
Thank you for listening.
Background: I am 44/yo f with family history of mnd (both my uncles (mum’s brothers) sadly diagnosed and passed, and I since have discovered evidence of Mnd going back on my mum’s father’s side for several generations. Onset ages vary from 20’s to 80’s. Progression rates also vary.
My symptoms: I had vaguely been aware that my hands had felt clunky or less nimble when cooking etc for several months but didn’t think much of it until late August when I was hanging out washing and my ring and pinky finger couldn’t seem to extend up and over the line whilst I was pegging the clothes. That stopped me in my tracks as several days before my left hand had gotten stuck in a painless claw-like position after I’d been holding something and I was able to painlessly stretch it out and thought I was just dehydrated or something until the washing line incident.
I also have some weakness in my right front ankle that has progressed up outer calf (Feels like I’m recovering from a ligament injury or something, but obviously have no such injury).
All over body twitching has also started about 2 weeks ago when at rest.
Today my left hand feels worse than the right, it aches like it’s about to cramp when I use it, my fingers feel stiff and uncoordinated and this morning I found it harder than usual to unclip a container lid while getting breakfast. My wrists are also clunking and it’s difficult to release small things from my hand when I’ve picked something up. It’s like my joints are too stiff or something.
Medically: I have been to my GP and had an mri of my brain and cervical spine. Both were clear. Strength tests performed by gp were fine, but he referred me to a neurologist because of my ongoing symptoms and family history. His referral letter unfortunately queries whether it’s early onset mnd. I see the neurologist next week.
Obviously I’m terrified. I have an almost 7yo boy and I feel I’m getting worse daily. I know I can only be diagnosed by my neurologist, but does this sound familiar at all?
Thank you for listening.