Hello everyone,
I have been reading some of the messages and posts on this site and I don't seem to find anything about Familial ALS. That is what I am dealing with. My husbands family has had 8 deaths that they know of, since 1951, the 2 most recent where his sister and cousin. The first 2 females on the list. His sister was 45, died in Feb 14, 2003, and his cousin was 39, died Feb 5, 2007. The rest of them where men ranging from ages 40 to 65.I also don't see alot about pain. All of my husbands family member had extraordinary amounts of pain. And from diagnosed to death was all less than a year for everyone of them.
Enough of the family history for now. I am very worried about my husband. He has developed pain in his right leg 4 weeks ago. It started out like cramping he said and it has progessively gotten worse since then. It is now almost constant. He has been to his Dr and the ER and they can't find anything wrong with him. He also drools at night in access but not as bad during the day. It so off and on. He also slurrs his speach occasionally, off and on. I am hoping to be able to talk with others reguarding these issues. It is hard for me to talk to people that have not had experience with this awful illness. My heart goes out to all that have this illness and their family members. This forum, I am sure, will be helpful to me now and in the future. I hope that I will be able to help someone too.
Sincerely Pat
I have been reading some of the messages and posts on this site and I don't seem to find anything about Familial ALS. That is what I am dealing with. My husbands family has had 8 deaths that they know of, since 1951, the 2 most recent where his sister and cousin. The first 2 females on the list. His sister was 45, died in Feb 14, 2003, and his cousin was 39, died Feb 5, 2007. The rest of them where men ranging from ages 40 to 65.I also don't see alot about pain. All of my husbands family member had extraordinary amounts of pain. And from diagnosed to death was all less than a year for everyone of them.
Enough of the family history for now. I am very worried about my husband. He has developed pain in his right leg 4 weeks ago. It started out like cramping he said and it has progessively gotten worse since then. It is now almost constant. He has been to his Dr and the ER and they can't find anything wrong with him. He also drools at night in access but not as bad during the day. It so off and on. He also slurrs his speach occasionally, off and on. I am hoping to be able to talk with others reguarding these issues. It is hard for me to talk to people that have not had experience with this awful illness. My heart goes out to all that have this illness and their family members. This forum, I am sure, will be helpful to me now and in the future. I hope that I will be able to help someone too.
Sincerely Pat