My ex husbands mother died of ALS in 2003 and a few years ago I found out that my ex husbands brother was diagnosed with ALS as too. When I heard the news, I really thought that he was misdiagnosed. He's only 43 years old and I was in total denial. Having said that, communication has not been the best between my ex's family and I just recently found out that my ex brother in law is having a hard time walking. So, denial is not an option and the reality is, ALS is familial in my sons case.
I have done my research and I understand that my ex has a 50/50 chance of getting it. Even if the gene was passed on to him, it doesn't mean he will get it but my son, who is 16 years old, wants to have genetic testing done to see if he carries the gene. While I have mixed emotions, I respect his decision and I will support him.
My question is, does anyone know how I would go about getting him tested? Do I just make an appointment with a doctor and ask the doctor to order the test?
If anyone has any knowledge of FALS to share, I would be grateful.
I have done my research and I understand that my ex has a 50/50 chance of getting it. Even if the gene was passed on to him, it doesn't mean he will get it but my son, who is 16 years old, wants to have genetic testing done to see if he carries the gene. While I have mixed emotions, I respect his decision and I will support him.
My question is, does anyone know how I would go about getting him tested? Do I just make an appointment with a doctor and ask the doctor to order the test?
If anyone has any knowledge of FALS to share, I would be grateful.