perfectpour
New member
- Joined
- Feb 13, 2016
- Messages
- 3
- Reason
- Lost a loved one
- Country
- Uni
- State
- South Carolina
- City
- Conway
Hi, I belong to a FALS family that has lost 13 members to ALS, including my father at the age of 55 and his brother at the age of 48. They had several aunts, uncles and cousins pass from ALS as well. I still can't believe this, but unfortunately none of them were tested for defective genes.
My question is this...Do you know of a specific defective gene related to ALS that has been identified to makes ALS progress unusually fast in patients? All of my family members with ALS have passed in 10 months or less from the onset of symptoms. So it moves very fast in this family. Just wondering if there is any useful information associated with what our family experiences. Thanks for your time.
My question is this...Do you know of a specific defective gene related to ALS that has been identified to makes ALS progress unusually fast in patients? All of my family members with ALS have passed in 10 months or less from the onset of symptoms. So it moves very fast in this family. Just wondering if there is any useful information associated with what our family experiences. Thanks for your time.