wishingonwind
New member
- Joined
- Aug 9, 2007
- Messages
- 9
- Reason
- PALS
- Country
- US
- State
- CA
- City
- Santa Cruz
Hboyajian,
Thanks for the suggestion of genetic testing. As I said in my earlier post, the test only identifies 20% of FALS cases, so a negative would by no means allay our fears -- and it would almost certainly make my husband uninsurable. That's why for now we aren't going to take it... It's quite unreliable.
I think for now our focus needs to be on preparing for and accepting that my husband may get this disease in the not-too-distant future, hoping to be spared, and enjoying our time together!
take care.
Thanks for the suggestion of genetic testing. As I said in my earlier post, the test only identifies 20% of FALS cases, so a negative would by no means allay our fears -- and it would almost certainly make my husband uninsurable. That's why for now we aren't going to take it... It's quite unreliable.
I think for now our focus needs to be on preparing for and accepting that my husband may get this disease in the not-too-distant future, hoping to be spared, and enjoying our time together!
take care.