Ceelea
Active member
- Joined
- Mar 17, 2017
- Messages
- 39
- Reason
- Lost a loved one
- Diagnosis
- 03/2017
- Country
- US
- State
- VA
- City
- Orange
Innocence lost, perhaps?
Mon took a nasty fall and banged up her head and wrist on Saturday. One eye swelled shut, purple down onw side of her face, really unstable. When she was still, well, wonky and having extra difficulty walking today, I took her in to the hospital where she goes to clinic.
While I'm pleased to know she didn't break anything, we got lots of repeat questions and no answers. Clinic neurologist on call came down with 2 students and ran her through the neuro stuff, when we asked if he could tell us anything he sort of looked down his nose and repeated what I now call the "snowflake" mantra. On top of which, apparently they haven't got her June clinic visit on their calendar.
I'm wondering what their purpose actually is? We have asked a third tine for a referral for an als-aware PT, they seem to take lots of observations, but they don't seem to do much. ALS rep stopped by with tshirts, but the rest I Appear to be doing and researching. (This being the rant part).
Other than having them do a wheel chair fitting when they will, what is their purpose? I feel like I'm trying to order a hamburger at a chicken stand.
Mon took a nasty fall and banged up her head and wrist on Saturday. One eye swelled shut, purple down onw side of her face, really unstable. When she was still, well, wonky and having extra difficulty walking today, I took her in to the hospital where she goes to clinic.
While I'm pleased to know she didn't break anything, we got lots of repeat questions and no answers. Clinic neurologist on call came down with 2 students and ran her through the neuro stuff, when we asked if he could tell us anything he sort of looked down his nose and repeated what I now call the "snowflake" mantra. On top of which, apparently they haven't got her June clinic visit on their calendar.
I'm wondering what their purpose actually is? We have asked a third tine for a referral for an als-aware PT, they seem to take lots of observations, but they don't seem to do much. ALS rep stopped by with tshirts, but the rest I Appear to be doing and researching. (This being the rant part).
Other than having them do a wheel chair fitting when they will, what is their purpose? I feel like I'm trying to order a hamburger at a chicken stand.