Faciculation

Status
Not open for further replies.

Rosemoon

New member
Joined
Aug 1, 2022
Messages
5
Reason
Learn about ALS
Diagnosis
00/0000
Country
TR
State
TR
City
İstanbul
Hello
My deepest love to you all.
I am 45 years old female.
7 months ago I noticed an intermittent twitch on the side of my left hand.
And of course, I learned about als disease by doing research on Google.
Over time, the twitches spread to my whole body, first to one foot, then to the other, my legs, my face.
I went to the neurologist. An emg was done on July 21. The result was normal. There was nothing significant in my blood tests.
I started taking medication with the diagnosis of hyperthyroidism 3 months before the twitching started. I still continue to use it.
The sides and bottoms of my feet vibrate like a constant electric current. It makes me very uncomfortable. I have twitches in my legs in the form of a constant tickling sensation.
It's like I have trouble grasping things in my right hand. Sometimes I feel good.
Could all this have something to do with als?
I am very curious about your valuable comments.
 
A normal EMG and no clinical weakness several months out from widespread twitching all argue strongly against ALS, so I don't see that as a concern. I would keep in touch with the practitioner who is helping with your hyperthyroidism as your medication level might benefit from an adjustment.

Best,
Laurie
 
Thanks for your answer.
I noticed some similarity in the symptoms of someone who just posted in the new diagnostics section of the forum. He stated that the first EMG was normal.
As the fasciculation never went away, it gradually spread throughout my body.
I don't know if it's psychological, but I feel the strength in my right hand diminishing.
There is a vibration in my feet that I feel from the inside that is not seen from the outside.
The last 3 months have been very bad.
If it was bfs, I think the twitches should have decreased from time to time. However, it is not decreasing at all, it is getting more and more intense with each passing day.
 
Please state to whom you are referring. That helps give a better context in which to compare your case to theirs. Nothing you've stated points to ALS, so I'm curious which member you are talking about.
 
BFS could be something you live with the rest of your life, it will not necessarily decrease and just go away although it might.
Twitching means nothing.
If you want to ask questions here, please always carefully answer the questions we ask back.
You were asked 1.5 hours ago who you are referring to so we can answer in context. That will help us help you, so please do reply since you are staying online here feeding your fears.
 
Hello
The person I was talking about was smithp38 in the new diagnosis section of the forum.
He said his mother was diagnosed with als on December 23. His first symptom is general body twitching and he has a clear emg.
My complaint is that I have twitching all over my body.
I have a clean emg taken 2 months after the twitches started.
I thought that in a situation where the only symptom is twitching and there is no weakness yet, the EMG result may be normal.
My confidence in my emg result seems to have waned a bit.
I have read many articles on this subject. I think I'm a little confused.
In fact, right now, if my twitching is completely gone, I'm ready to forget all your worries.
The twitches never subside.
I love you all very much. I respect your help.
 
Smith’s mother ( who is likelyquite a bit older than you) had clinical weakness ( foot drop) develop at some point from July until December. You are longer than that with only twitching. It is also unclear as to whether the first doctor was competent at all. They certainly provided misinformation to her.

you can absolutely find stories that will support your fears. Did searching like that help you at all?
 
The difference in Smith's post and yours is that Smith's mum had twitches and then, within 3 months, developed foot drop (failure). She then went back for another EMG, and that one showed ALS. You've had no clinical failure, and this has been ongoing for many months. Sometimes, people twitch; I twitch all the time, and I do not have ALS. Twitching on its own is meaningless. We can not say that enough.
 
Thank you so much for clarifying, it has helped us show you the important difference between that posters mother and what is happening to you. This is why internet searching is so dangerous. With no medical knowledge, you can read something and immediately think 'hey that's what is happening to me', when it may be completely different.
Seeing a doctor who can perform a clinical examination and run tests is your only way to get back to health.
Twitching means nothing. Believe it or not, but we won't move from the position of knowing that ALS is about failing.
All the very best.
 
Hello
I offer my most sincere regards.
I love you very much. I saw empathy from you that I have never seen from anyone. I am grateful to all of you for this.
Unfortunately, I feel worse.
The fasciculation that started in only 1 hand took over every part of my body over time. It started to happen in my last non-twitchy back area. They're so fast I'm amazed.
But the ones on my face bother me the most.
It has been 9 months since it first started.
I think I've reached the breaking point now.
I made an appointment with a good neuromuscular specialist. February 28 is my appointment date.
I want to ask those whose first symptom is twitching.
How long after the twitching did the weakness develop?
 
9 months, no clinical weakness, and a clean EMG. You don't have ALS , but sadly, I doubt your appointment on the 28th will give you the peace of mind to let go of this disease. In any case, you choose to believe what you want, seeing as you don't believe the folks here or all the other pertinent info that says you don't have ALS.

Please update after the 28th.
 
Let us know how your appointment goes on the 28th. I'm sorry this has caused you so much stress.

Try to stay busy and off the forum until your appointment. It will only make your stress worse.

Best wishes.
 
Status
Not open for further replies.
Back
Top