Nicky151179
Active member
- Joined
- Aug 6, 2013
- Messages
- 48
- Reason
- Learn about ALS
- Country
- Au
- State
- Nsw
- City
- Corowa
Hi there I have another neurologist appointment coming up a doctor think I have lower and upper motir damage,my eyebrows spasms a lot I've had wasting in face and muscles have dropped its changed my whole face I get twitching near cheeks and lip when used my tongue also twitches but no slurring or choking.i have had muscle tone everywhere on body and twitches too I get a really sore neck and back.if anyone with bullbar onset can tell me if this sounds like bulbar onset that would be great I'm hoping its something else and not als,all of you are very strong people.any replies would be really great as you can see pretty scared