Face twitching?

Status
Not open for further replies.

charcotman

New member
Joined
Sep 28, 2007
Messages
2
Reason
PALS
Country
US
State
mi
City
holland
Is there face twitching associated with ALS or mostly large muscle twitch?
 

ltr

Senior member
Joined
Feb 11, 2007
Messages
690
Country
US
State
NY
City
Elmira
I think with ALS it is mostly large muscles, but maybe a PAL will answer that. I do know that with myopathy I get facial twitching. Sometimes it feels like a hook is pulling my lip up!
 

mamaoftwo

Distinguished member
Joined
Aug 16, 2007
Messages
224
Reason
Other
Country
US
State
NY
City
larchmont
I am as yet un-diagnosed but most everything else has been ruled out at this stage - I have facial twitching. The neuro told me that with ALS, the facial twitching is not typically in the eye area but in the cheeks, lips, jawline. This is where I have it. :(
 

charcotman

New member
Joined
Sep 28, 2007
Messages
2
Reason
PALS
Country
US
State
mi
City
holland
Well I went to U
niversity of Michigan a month ago because of weakness to my legs and pain to the muscles in my thighs. I also had EMG which were normal. I have twitching of about every muscle in mu body including my thighs, calf, sides, shoulder, back, ect... But in the past 3 days my left ear and my muscleabove my upper lip have been twitching.
U of M says I don't have ALS but did not give me any reason why they did not think I didn't.

The twitching is worse at rest or when I relax. I am getting really concerned because now it feels like I have a lump in my throat. I have had that for a week now.

Thank you for your responses.
 

trying to stay positive

Distinguished member
Joined
Sep 17, 2007
Messages
300
Reason
CALS
Diagnosis
08/2007
Country
US
State
Illinois
City
Chicago area
When my husband was at clinic last week he asked the doc about some twitching he has been having in his eyelid. She told him it is most likely not ALS related, but from stress. I agree! I have had the same twitching myself lately! (gee...I wonder why?!)
 

patricia1

Very helpful member
Joined
Sep 18, 2006
Messages
1,149
Reason
PALS
Diagnosis
7/1999
Country
US
State
newjersey
City
lopatcong NJ
The bridge of my nose twitches so much my glasses actuallly move up and down Pat
 

ilgal

Active member
Joined
Jul 28, 2007
Messages
83
Reason
PALS
Diagnosis
00/2001
Country
US
State
IL
City
Somewhere
I was diagnosed in July and I have had facial twitching, mostly above my upper lip.
 

AHands

Distinguished member
Joined
Dec 10, 2007
Messages
206
Reason
PALS
Country
US
State
NC
City
Carrboro
I've got a lot of twitching, but NOT in the face. I do get the lump-in-the-throat feeling, stiffness in the neck and weakness in the neck--now I understand why Stephen Hawking goes around with his head to one side! Gosh I'd like to put on a neck brace sometimes, but i'm afraid artificial support would make the muscles weaken faster. My hands have been atrophying for almost three years, but I've kept up a LOT of bicycling, and so far my legs are still strong. No way to know for sure if the exercise is what has kept my legs from atrophying, but it apparently hasn't hurt.
 

Icanmanz

Senior member
Joined
Jul 14, 2007
Messages
947
Reason
PALS
Country
Uni
State
Texas
City
Tomball
I am not a Pal, but I am a former Cal. Is there face twitching associated with ALS? According to the issues that my late son had long before being diagnosed'ed, "yes." I do remember that he had issues with twitching aove/under his eyes, around his lips, and other facial areas. How well I remember that, but then I knew nothing about this damn disease!

Irma
 
Status
Not open for further replies.
Top