Eyes in ALS and double vision

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ltd17

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Joined
Jul 24, 2017
Messages
20
Reason
Loved one DX
Diagnosis
07/2017
Country
US
State
MN
Hi guys, it's been 2.5 years since my mom got a diagnosis of probable ALS but cannot exclude MG, it's all very complicated. There was a partial response to medication for MG but there is still progress. Legs are strong and not affected.

Recently they did a SFEMG of the eyes, which showed increashed jitter and blockage, which usually matches with MG.

However, ALS patients can also have it according to the neurologist. Are there any PALS on this forum that are also unique and have eye issues? She has for example double vision when looking down. I know usually ALS doesn't affect the eyes according to literature, but I am curious about the exceptions
 

debwilson77

Active member
Joined
Jan 10, 2016
Messages
63
Reason
CALS
Diagnosis
02/2016
Country
US
State
arizona
My husband had double vision for a while, started using MMJ and it went away. Don't know if it had anything to do with or not.
 
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