SurrealReality
New member
- Joined
- Feb 21, 2019
- Messages
- 1
- Reason
- Other
- Country
- US
- State
- Florida
- City
- Eustis
Hi! I havent been officially diagnosed yet, however this is NOT a "do I have ALS" post. They've done all the tests and, as I'm told, are just waiting to see if umn signs develop.
Anyway, on to my question... my symptoms began with eyelid twitching. I'm completely terrified that this means my eyelid function will deteriorate much more quickly than most ALS patients, and I'll end up without any means of communicating long before my lungs give out.
Does anyone here have any experience with eyelid twitching early on in the disease? If so, are you (or the person you care for) still able to communicate using eye -tracking software later on in the course of the disease?
Anyway, on to my question... my symptoms began with eyelid twitching. I'm completely terrified that this means my eyelid function will deteriorate much more quickly than most ALS patients, and I'll end up without any means of communicating long before my lungs give out.
Does anyone here have any experience with eyelid twitching early on in the disease? If so, are you (or the person you care for) still able to communicate using eye -tracking software later on in the course of the disease?