quadbliss said:
Hi Conrad,
I experience exactly what you describe. I have not found any solutions yet, nor spoken to a professional.
Mike
Hi Mike,
Well, that clinches it. I have been living the last 7 months with progressive weakness, muscle twitching all over my body, have muscle atrophy in my hands, neck, legs and buttocks. I've lost over 30 pounds, but I eat as much as I always have (although food doesn't taste as good as it use to), painful cramps if I sit down for more than 1/2 hour, or cross my legs, in my lower back, and I even have to be careful how I lay my arms down, or they will cramp, my voice is nasal, and I have troble sometimes swallowing, and the back of my throat feels very hard. I can still walk, but my legs feel like they weight 300 pounds, and I am unsteady, have lost my balance, and fell on my left arm, and cut it real bad. I feel trapped in my own body, and I know it is only going to get worse. Breathing is starting to get labored, and just in the last two weeks, my eye's are dry and can't focus well.
I am not on any drugs, and I have been to the ER 2 times, and I have seen my GP and two of the top Neurologists, and had blood and urine work, a EMG, and a CK test. All came back normal! My family doesn't believe I have any problem, nor do any of the doctors.
What can you do, when no one believes you have serious muscle disorder (most likely ALS), and suffer terribly? The cramps are very painful, and at least they can give you medication for that. I don't sleep well because of the pain, and so I get very tired during the day. I am at my wits end, and am thinking of just giving up, and lay in bed all day.
Does anyone have any suggestions? I feel like the only way a doctor will diagnosed me, is when I can't walk anymore.
Conrad