Exhaustion

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stellfox

Member
Joined
Aug 25, 2009
Messages
10
Reason
PALS
Diagnosis
05/2021
Country
US
State
MA
City
townsend
Being somewhat really familiar with this disease - having 3 direct family members die in 3 years - I don’t remember if they had the extreme exhaustion after doing fairly light things like putting away clothes - in a wheelchair but can still stand for small amounts of time with support but seems most any small task wears me out quickly - now right leg and right arm mostly affected - anyone have any insight ? Thank you in advance !!!
 
sometimes fatigue relates to impaired breathing but not always. My breathing is still good but I very much have to break up activities to manage fatigue. Putting away clothes is a good example. I do it in stages

Mass General is doing a fatigue study on PALS ( online questions every month or two) so they obviously see it as an issue too
 
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