I came across this article regarding exercise and risk of earlier onset for those with C9 gene. My dad had C9 ALS and we are both runners. We trained and ran NYC marathon together in 2004. When he was diagnosed in 2017 we were running together again but shorter distances. My family and I first became concerned when we noticed that he was taking significantly longer to finish each race. He was diagnosed at 70 and passed at 72. This is consistent with his father and sister and other family members who were both late 60s to 70s. They did not exercise to the extent that he did. I’m trying to decide if, for my own risk, it’s worth keeping the study in mind.
Daily exercise, Especially biking and running, has been such a reprieve for me. It helps my anxiety and ADHD and also keeps me feeling connected to some thing my dad and I enjoyed together. I’d like to take advantage of what my body can do, while I can still do it.
I’m curious to see what others, who may be in a similar situation, think about this. Thank you!
Lancet paper
Daily exercise, Especially biking and running, has been such a reprieve for me. It helps my anxiety and ADHD and also keeps me feeling connected to some thing my dad and I enjoyed together. I’d like to take advantage of what my body can do, while I can still do it.
I’m curious to see what others, who may be in a similar situation, think about this. Thank you!
Lancet paper
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